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Old 04-02-2007, 08:08 PM   #21
Mary Anne in TX
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Steph, I send my prayers for you and your dad. If love could turn it all to the good, yours would be enough to get it done! Dads are just the bestest!
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 04-02-2007, 08:53 PM   #22
vickie h
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Dear Steph, Praying for your father, for his health to return, for you and he to spend many more days and years together. Love, Vickie
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Old 04-04-2007, 02:16 PM   #23
Cathy1
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Dear Steph,

I am praying for your beloved father during this Holy Week. He sounds like such a wonderful person and dad.Keep praying hard at the hospital with your family.
We are all in the comforting hands of an awsome Heavenly Father.
God Bless And Keep You All- Cathy
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Old 04-05-2007, 09:01 PM   #24
MCS
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I'm so sorry to hear about your dad, Steph. I don't check pages everyday so I will be a little late on wishing your family hope and recovery


Maria
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Old 04-05-2007, 09:05 PM   #25
lexigirl
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Saying prayers for your beloved dad right now. I hope he is doing better.

Hugs and Prayers,
Lexi
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Old 04-05-2007, 09:05 PM   #26
Soccermom
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I am praying too,{{{{{{{{{{{{ Steph }}}}}}}}}}}
Marcia
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Old 04-06-2007, 12:05 AM   #27
StephN
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Superbug

You all are just the best! Your good wishes and prayers are meaningful. Things have gone from bad to worse this week with the discovery that Dad has MRSA, the worst of the "superbugs," in his chest.

The way he is being kept sedated and on the ventilator (mainly to keep him quiet and out of pain) is worse than what I know of the passing of my cancer sisters over the years. This is a BIG "BUT" - he does not have a major disease process such as cancer, and all vital signs are stable in the normal range. His fervers are down now and his white blood cell count has been in normal range the past 2 days. His doctors are expressing hope.

They ask us to keep walking through this a day at a time and see how Dad does. I can hardly bear to see him like that day after day, but I have to go down and take Mom to the hospital each day.

We are doing the isolation "thing" putting on special gowns and gloves when we enter his room. We are not allowed to take any personal belongings in with us so leave everything in the cart outside the door. At present there are five such rooms in that cardiac ICU. Apparently there are a LOT of MRSA carriers out there and the hospital is screening surgery patients as part of pre-op tests. Dad was neg of course.

This is a topic for another day, but an important one, as many of us cancer survivors go to hospitals frequently and we need to take precautions against these virulent bacteria that are getting more prevelant.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 04-06-2007, 03:57 AM   #28
Mary Anne in TX
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Good Morning (middle of the night, I see for you) Steph! You're doing the very hardest thing. Seeing your dad so sick and having to comfort your mom as she deals with it. Nothing that happens to us is as hard as that, is it? When my mom was so ill, there were many days that I thought I couldn't get through the day. But I did. I must have worn out God's ears with prayer for strength and peace and no pain for mom. That prayer worked each time, though sometimes it took a while for it to get inside of me. Best wishes for you and your family during this very difficult time. May you take it one hour at a time and experience more love than pain. ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 04-06-2007, 06:28 AM   #29
Christine
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Stephanie,

Of course our prayers will go out for your Dad on this holiest of weekends.

Hugs
Christine
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1990, July DX 1.1cm er-, pr-
Lumpectomy, 5U4, radiation
1999, June mets to chest and brain
HER2 3+++, er- pr-
AC, Taxol, Herceptin, Gamma Knife (3 treatments) WBR
NED July 2001
December 2001 - Founded HER2 Support Group
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Old 04-06-2007, 07:52 AM   #30
Becky
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Dear Steph

I have been away on business since you updated us about your father. I am so heartbroken. Hopefully by now he is resting comfortably and beginning to heal well. I am thinking of you and your family and will say a special prayer today.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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