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03-02-2007, 02:44 PM
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#21
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Senior Member
Join Date: Aug 2006
Posts: 492
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I hope your dad will be resting comfortably soon. He sounds like he has a big heart- and it should be easy to fix it! Take care of yourself also friend. Hugs and prayers to your family!
Margerie
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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03-02-2007, 03:05 PM
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#22
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Steph,
I just arrived back from work and read your post. Your dad and your family are in my thoughts. Thank you so much for posting the picture. They are a beautiful couple. Let us know how everything goes.
Best wishes,
Barbara H.
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03-02-2007, 08:23 PM
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#23
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Senior Member
Join Date: Nov 2005
Posts: 43
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Hi Steph,
I will be praying for your wonderful dad! You are so special and have always been a great help to me. May the Lord watch over your dear father and bring him safely through his operation. God Bless and Keep You All! Cathy
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03-03-2007, 06:05 AM
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#24
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Steph...
sending prayers your way. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-03-2007, 07:34 AM
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#25
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Only good thoughts and wishes your way.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-03-2007, 08:21 AM
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#26
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Hi Steph,
Sending good thoughts your way from up north in sunny(today at least) Toronto Canada.
Best wishes for a full and speedy recovery to your Dad.
Caya
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03-03-2007, 09:17 AM
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#27
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Founder - HER2 Support Group
Join Date: Feb 2005
Location: Carlsbad, CA
Posts: 361
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Your Dad is a fighter. I guess we know know where you got it from. Our prayers go out to him.
Hugs
Christine
__________________
1990, July DX 1.1cm er-, pr-
Lumpectomy, 5U4, radiation
1999, June mets to chest and brain
HER2 3+++, er- pr-
AC, Taxol, Herceptin, Gamma Knife (3 treatments) WBR
NED July 2001
December 2001 - Founded HER2 Support Group
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03-03-2007, 10:21 AM
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#28
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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BIG HUGS from us to you...
What a beautiful couple! Just want you to know my dad had Quintuple Bypass 2 years ago, and did just fine. He has multiple chronic health problems and even so came through with flying colors, all things considered. It's so wonderful they could come to you for the time being, that will go a long way towards helping him get back on his feet.
Please give your parents our best wishes.
<3 Lolly & Frank
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-03-2007, 10:44 AM
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#29
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Senior Member
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
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Best wishes to you and your family - will be sending positive vibes your way - B
__________________
Belinda
- Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
- Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
- May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
- March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
- Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
- January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
- Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
- Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
- ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
- Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
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03-03-2007, 01:19 PM
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#30
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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He made it!
Through SEVEN bypasses and the procedure for the atrial fib. It was a long ordeal for all of us, and I did not get home with Mom until 10:30 last night.
We only left the hospital when Dad was breathing on his own, his heart rate numbers were better and he was talking like himself. I took my cue by when Mom was comfortable leaving him.
You would not believe how many IV lines and pumps they had with fluids of all kinds going into him. We are used to IV's with our treatment, but this was like 8 or 9 different pumps going into a couple of main lines.
They are removing some of the lines and drains today and we are on our way to the hospital. My younger sister was there at 8 am to help out with his breakfast, but the nurse told me "he helped himself." He also has not complained much about pain, which is also good.
Your prayers and positive energy were much felt and appreciated.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-03-2007, 01:50 PM
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#31
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Steph,
Thank you for posting this news. It sounds as if he is well on his way to recovery. I wish your parents and family all the best and you remain in my thoughts.
Barbara H.
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03-03-2007, 04:11 PM
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#32
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Well, don't forget....
He has YOUR genes, you know, and they are very stubborn fighter genes....! I enjoyed seeing the nice photos of your indomitable forebears.
You are right, the pain is the next challenge, according to our in-law. That, plus having to take things much slower for a while. If he has your genetics that won't be so easy -- I KNOW.
Thanks for the update, StephN,
AlaskaAngel
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03-03-2007, 04:43 PM
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#33
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Stephanie
thinking of you and your family and wishing you the best.
love
linda
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03-04-2007, 11:38 AM
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#34
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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so happy
to hear the good news and I'm STILL going to send those speedy recovery prayers his way. Get some rest for yourself too.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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03-04-2007, 09:10 PM
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#35
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Glad all is well. Enjoyed all the pics of dad and HER2 members. Love and prayers. Bev
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03-04-2007, 09:38 PM
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#36
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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StephN,
I am sending your father all my prayers and well wishes...
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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03-05-2007, 01:21 PM
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#37
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Wow 84 yrs. old!
Stephanie: Sending you best wishes and lots of prayers for your Dad.
I understand completely, I was very close to my father who passed away 8 years ago. He's was a sweet and supporting father.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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03-05-2007, 02:30 PM
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#38
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Life goes on. Wishing a successful operation and quick recovery for your dad. I also wish you (and me) successful surgery at age 84.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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03-12-2007, 12:25 PM
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#39
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Doing better - all of us ...
Thanks for your sweet thoughts and prayers.
Dad finally made it out of intensive care around 5 pm yeasterday - a full NINE days after his surgery. A condition that was not thought to be very important became exacerbated with the surgery and he could not stand without getting dizzy or even passing out! They finally got him on some med that has helped correct that and his is now on his feet a bit and getting stronger every day.
Poor man is just starved for some real solid sleep after this long in the hospital.
His cardiac surgeon wants him to stay here with us for 10 days after getting out of the hospital later this week, so we will be looking at what special equipment, bed etc. will be needed.
Last night Dad told me: :"Well, I never intended to spend the WHOLE month of March with you!" Guess he just thought he would be his normal "Viking" self and walk out of there in a few days... 
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-12-2007, 04:38 PM
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#40
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Great news Steph! Glad your dad is on the mend and things went well.
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