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02-21-2007, 07:03 PM
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#21
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sheila,
Congratulations on your milestone! You are an inspiration to the rest of us that, yes, we can do it. Your positive attitude is refreshing. Also, I'm glad to hear your grandchild is doing well
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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02-21-2007, 07:37 PM
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#22
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Congratulations Sheila, I hear everything you said and will be doing mine next month. Amazing how this changes us! Hope you see many, many more years and like Steph said head for the 10 year club. Wishing you a great 2007. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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02-21-2007, 07:43 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Congratulations Sheila. I am thinking of you today (and everyday).
With love,
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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02-21-2007, 08:08 PM
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#24
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
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:d
You know, Sheila, my first experience with breast cancer was as a student nurse in 1992, back in the day when it was literally a death sentence. That's pretty much how I felt, that I'd been given a death sentence with my diagnosis, until I found you and all the other women on this site. I can see that cancer, although not fun by any means, does not mean life is over. The image of my patient those many years ago will always be with me, but has been joined by the faces of the women here with their warm smiles and bright eyes. You and all the other women on this board are THE example of how we can live...and thrive through anything!! Congratulations on 5 years!!! hi-5, sister!
Stephanie
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02-21-2007, 08:30 PM
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#25
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Happy 5TH
Sheila,
Thank you for bearing your heart and soul on your 5th Anniversary.
Many of us can so easily relate - at first there is such a feeling of
doom....and then somehow we manage to capture a strength that
we did not know we had.
Glad to hear the good news that your granddaughter is doing well after
such a big surgery. What a special day for you!
God Bless
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-21-2007, 08:41 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Hey there Sheila,
5years and counting - thanks for sharing this along with your constant encouragement to everyone.
Enjoy your "anniversary" I hope you celebrate!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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02-21-2007, 08:56 PM
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#27
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Senior Member
Join Date: Jan 2007
Posts: 138
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Congratulations, Sheila!!
Karen
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02-21-2007, 09:37 PM
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#28
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Way to go Sheila! I'm relatively new to this board, diagnosed Oct. 2006 - barely 4 months out - I look to you as an inspiration in the fight against this horrible disease - I still am in a bit of shock about my diagnosis, but reality is setting in after the mastectomy and 2 rounds of chemo, hair falling out - I just remember that I can beat this, as I check the board and see the good stories like yours Sheila - hoping for another 5 years for you ( and another 5, and another 5 etc. )
Best regards,
Caya in Canada
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02-22-2007, 02:07 AM
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#29
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Celebrate!
Sheila,
Congrats on your 5 years. You are such a source of inspiration to many of us. Thank you for sharing your life with us and looking for many more years of celebration.
________
Wellbutrin lawyer
Last edited by sassy; 08-22-2011 at 09:07 AM..
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02-22-2007, 02:36 AM
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#30
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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How comfy were flip flops that long ago...
So tell us - were you such a flip-flop fan 5 years ago or is this an "acquired" taste?
Seriously now - congrats! 5 down and 50+++ to go!
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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02-22-2007, 07:05 AM
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#31
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mel
Flip Flops have become a way of life for me since starting Xeloda....not very practical for Illinois winters...now if I can find socks I can wear with them...might look like a geek but the feet will stay warm!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-22-2007, 12:49 PM
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#32
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Flip flop socks
Hey Sheila -
It is a simple solution to find "flip flop socks!"
Just become a Geisha on top of everything else! They have something to wear over their feet that work with those thong/clogs they wear.
Seriously there may be an Asian specialty store that might have such a thing. I have seen them here in the Seattle area where there is a large Asian population.
Or take up knitting and knit yourself a custom pair of socks. I don't think my Chemobrain could keep up with the knit or pearl sequence ...
Let us know what you come up with, OK?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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02-22-2007, 12:52 PM
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#33
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Many HAPPY returns and CONGRATULATIONS,Sheila! Doin' the happy dance for you!
Marcia
PS "Wally World" sells socks with toes...maybe that would help?(they are muticolored0... you can be a trend setter!!!!! Hugs!
Last edited by Soccermom; 02-22-2007 at 12:55 PM..
Reason: adding info
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02-22-2007, 01:09 PM
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#34
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Best wishes from Ireland:)
Sheila I said it before but your smile just cheers me up everytime I see it.
Congratulations on the five year mark, you're an inspiration to us all and I
love your upbeat happy attitude.
Thank you for sharing your special day...now go celebrate girl!!!!!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
Last edited by tricia keegan; 02-22-2007 at 01:10 PM..
Reason: Wrong spelling
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02-23-2007, 09:58 AM
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#35
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Senior Member
Join Date: Nov 2005
Posts: 943
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Amen, I think we all appreciate the small stuff more ,Sheila, after getting Her2 bc.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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02-23-2007, 05:06 PM
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#36
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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5 Years
Sheila, Congratulations on such a wonderful day! You are a bright, shining light for all to see. Thank you for the heartfelt inspiration. It has been 3 years for me and I look forward to many more with my grandchildren and children and loving husband (and friends like all of you here). I am sending you good wishes and healing prayers. Love and hugs, Vickie
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02-23-2007, 05:16 PM
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#37
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Senior Member
Join Date: Dec 2006
Posts: 136
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Sheila -
All I can say is "wow". I don't even know you but reading that post of yours was truly meaningful to me! That's all I can say.
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02-24-2007, 01:13 PM
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#38
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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I'm very glad that you have done so well. Love to have you with us on this board. You have certainly answered many of my worries, many times.
Wish you many many more years of life and relatively good health. You are inspirations to us all, that you can live with this illness and make the most of what God has given us to live with
Love
MCS ( maria)
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02-24-2007, 09:36 PM
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#39
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Senior Member
Join Date: Jul 2006
Posts: 869
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Sheila, Way to go! I am happy for you and thank you for your many replies to my questions this past year or so. Keep on shining!!! Ceesun
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