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Old 02-19-2007, 08:56 AM   #21
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Hello, I will ask for a petscan when I see him next which is i the begining of March. He told me the growth is on the tail of my pancreas, that the last catscan the see some inflamation there but know the is a growth there, and for my piece of mid I am going to demand a pet scan thanks for you help and I will let you know how I make out with everything. Thanks again it means the world to me and helps me get through my day!
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 02-19-2007, 11:36 AM   #22
Vanessa
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Location: Houston, Texas
Posts: 624
Best wishes. I am praying that the growth is a cyst.
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Old 02-19-2007, 03:14 PM   #23
heblaj01
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Karen,
Be sure to ask for a PET/CT scan, not just a PET scan. The combined PET & CT scan (which they sometimes call fused scans) is less prone to provide false positives than the plain PET scan.
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Old 02-20-2007, 11:43 AM   #24
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
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I will ask for a Pet/CT Scan. The more I think about this the more I need to know just what it actually is on my pancreas. Thank you to all!
__________________
Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 02-20-2007, 02:11 PM   #25
Joy
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Location: Ft. Collins, Colorado
Posts: 546
just more support
Karen, I'm thinking so many good thoughts for you. Glad doxil seemed to go okay (any reminder of adriamycin is stinky though-ugh). I fully support you in asking for the PET/CT combination. Remember they are the experts, but you are the boss of your health, treatment, diagnostics, etc.
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joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 02-21-2007, 07:07 AM   #26
MJo
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Location: Wilmington, Del.
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Kareneg -- My friend who is getting doxil for liver C was at support group last night (he's had trouble with fluid retention in his legs). He said he also gets a fever after his doxil infusion. His doctor isn't concerned. Just one more side effect to be aware of.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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