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11-29-2006, 04:46 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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I'm so sorry with this sad news. You and your family are in my thoughts. Be strong for her.
Big hug,
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12-02-2006, 12:51 AM
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#22
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Doing your best --
-- and thanks for your post, even though the news is not what we wished for your dear Mom. She was helpful and supportive here when she could be, so we try to return the favor.
Just feel bad that she has become weakened to the extent that she can not even get Tykerb. But really glad to hear the brain involvement is stable. She was supportive to me during my discovery of brain mets and problems with the steroid from "heck."
Let her know that we are all praying and sending her good wishes as she faces this time with the loving comfort of her family.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-02-2006, 03:15 AM
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#23
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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So sorry
I'm so sorry for you and your Mom facing this but know I'll be praying for you all.
Thank you for taking the time to update us.
Tricia
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12-02-2006, 09:52 AM
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#24
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Julissa, please give your mom a big hug from me. This is a sad time for you, I know, but it's so wonderful you're able to keep her at home with the help of Hospice. Blessings on you and your family, you're in my prayers.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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12-02-2006, 05:59 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Julissa
I am so sorry to hear this news.
love
linda
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12-03-2006, 12:22 PM
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#26
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Julissa, please tell your mom that so many of us are thinking about her. We are all praying for her comfort and wishing her a peaceful state of mind during this complicated time.
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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12-03-2006, 07:21 PM
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#27
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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I am praying for comfort and peace for your mom and your whole family. May God's strenghth be with all of you. God bless you.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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