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12-14-2014, 07:46 PM
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#1
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Member
Join Date: Jul 2013
Posts: 19
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Re: Any advice for Hot Flashes after chemo?
I don't remember how much Vitamin E but do remember they were gel caps and I took three of them daily (lol, I realize that's not much help).
__________________
Dx: April1st (yes April Fool's Day!), 2011
ER-/PR-/HER2+++ Tumor grade 3 size:1.6mmx1.2mm
Micromet to sentinel node, 5 auxiliary nodes were clear, stage 1B
April 13th, 2011 Double Mastectomy, no immediate reconstruction
May 2011 to Nov, 2011 chemo AC-TH plus
Herceptin until Sep 2012
11/2012 Began GP-2 vaccine at MD Anderson in Houston (monthly shots until April 2013), now receiving booster shots every six months
Began natural breast reconstruction with BRAVA procedure in Oct 2012
With Dr. Khouri at the Miami Breast Center.
Oct 2012 First fat graft
Jan 2013 Second fat graft
March 2013 Third fat graft
July 2013 Final touch-up with nipple reconstruction
November 2013: Vaccine Booster #1
January 2014 Nipple tatooing
April 2014: Vaccine Booster #2
October 2014: Vaccine Booster #3
April 2015: Vaccine Booster #4 (trial finished)
Dec 2015: Scar treatment with Kenalog and laser
Update: 2022 still in the clear and the GP-2 vaccine trial I participated in is moving to 3rd and final phase. None of the women that are in it have relapsed!!!
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12-14-2014, 10:01 PM
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#2
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Senior Member
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
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Re: Any advice for Hot Flashes after chemo?
I found the hot flashes to be almost as bad as the treatments as I threw up at the onset of the flash and had them about once every 5-10 minutes. I spent months throwing up from them. I did go on Effexor I believe it was 150 mg in the end. It helped considerably. I'm so thankful I have them now about twice a day only since I turned 50. They are mild and don't involve puking. It's just an annoyance now.
I believe when you're young, pre-menopausal and thrown into menopause, it's so much worse. The thing is, we can't predict it or even get other's experience. We're all going to be different.
I do hope you get some relief. I fought Effexor, but I couldn't function w/o being on something heavy duty.
Hugs,
-Julie
__________________
Julie
Live in Orange County, CA
Diagnosed with DCIS Oct. 2012
Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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01-21-2015, 05:32 PM
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#3
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Senior Member
Join Date: Jul 2013
Location: Katonah,New York
Posts: 228
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Re: Any advice for Hot Flashes after chemo?
I have decided to wean off the Effexor, 75 mg has not been much, if any help. I'm starting the pine bark extract with the blessing on my doc. I know Rhondalea uses it, anyone else out there that can offer some encouraging results with this. Doc wants to try nerontin but is ok with me tring this first. Started 100 mg yesterday.
__________________
3/11/13- normal mammo and US
4/30/13 Found pea sized lump while showering
5/10/13 core bx
5/15/13 dx IDC 1CM,
5/20/13 BRAC 1&2 neg
5/28/13 lumpectomy and SNB, ER/PR/Her-2+, Nodes neg,positive margins
6/13/13 revision of margins . Now clear
6/26/13 first TCH
Chemo Ninja~kutaki Zika Zukuchiri
10/18/13-Bx of calcification-neg whew
11/7/13 Started Radiation.
01/2014- Started Tamoxifen
06/09/14-Steriotactic BX left breast calcification-Benign
06/18/2014-completed one year of Herceptin!
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01-21-2015, 05:52 PM
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#4
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Senior Member
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
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Re: Any advice for Hot Flashes after chemo?
I did not like the side effects with Effexor but my hot flashes caused me to vomit and I was a complete mess. Neurontin did nothing to help me, but Lexapro has been a godsend. Very minimal hot flashes and no side effects (boyfriend sees a very positive change). Most of us hate to take more meds, so keep us posted on how its working for you. Good luck!
__________________
Julie
Live in Orange County, CA
Diagnosed with DCIS Oct. 2012
Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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01-21-2015, 08:22 PM
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#5
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Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
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Re: Any advice for Hot Flashes after chemo?
I hope the pine bark works as well for you as it has worked for me, Coux. I started it before I started Tamoxifen, so I have no idea how long it takes to work, but this abstract says 8 weeks. They were using Pycnogenol®, but it really is the same thing. The difference between them and me is that I take 100 mg twice a day.
Supplementation with Pycnogenol® improves signs and symptoms of menopausal transition
Pine bark also gets good reviews for improving cognitive function. Really makes me wonder what kind of mess I'd be without it.
__________________
2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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03-10-2015, 11:51 AM
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#6
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Any advice for Hot Flashes after chemo?
hated Effexor and it's a bear to get off of. takes a long time (you get head rushes). i researched this issue heavily. i found that Ditropan has helped me. it real purpose is for women for bladder control, off-label is that it can decrease hot flashes. and that's what it did for me. i was suffering horrendous numbers of hot flashes and night sweats - i remember i counted 40 once - and they weren't flashes either, they sometimes lasted a while (especially at night). Ditropan cut them down to about 10 per day. i was seriously on the verge of going off Tamoxifen, i was so distraught. i also have a hand fan in my purse and fans bedside and on my desk. i am supposed to finally end Tamoxifen in june and i pray that the hot flashes subside or if it's not too much to ask, resolve completely. i got my first one during my first chemo, only 5 minutes in. i asked what the hell was that? joy joy. that, my friend, is your life from here on out. i can find the ditropan study if you like. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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03-10-2015, 11:55 AM
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#7
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Any advice for Hot Flashes after chemo?
here is the article. 70% of the women responded positively to varying degrees. it does not have a lot of side effects (bonus) though you need to drink more water because it's drying, but again, water is great for you so no big deal. ditropan is oxybutynin: http://www.ncbi.nlm.nih.gov/pubmed/17204995
valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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03-13-2015, 08:16 AM
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#8
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Senior Member
Join Date: Jul 2013
Location: Katonah,New York
Posts: 228
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Re: Any advice for Hot Flashes after chemo?
V-ness, thank you for the information on Ditropan. I can not open the link to the study but I will look into it. For now, I have been on the Pine Bark ~ 7 weeks, increased to 200mg daily ~ 3 weeks ago. I think I'm seeing some minor improvement but I'm still hopeful that it will continue to improve. I had 3 "fair" nights in a row twice since being on the pine bark, I get all excited, then a horrendous night like last night... for ~ 3 hours I broke into sweats about every 20 min.
I'm planing on sticking with the pine bark for now, daytime flashes seem a bit less intense as well. I will explore ditropan just in case.
__________________
3/11/13- normal mammo and US
4/30/13 Found pea sized lump while showering
5/10/13 core bx
5/15/13 dx IDC 1CM,
5/20/13 BRAC 1&2 neg
5/28/13 lumpectomy and SNB, ER/PR/Her-2+, Nodes neg,positive margins
6/13/13 revision of margins . Now clear
6/26/13 first TCH
Chemo Ninja~kutaki Zika Zukuchiri
10/18/13-Bx of calcification-neg whew
11/7/13 Started Radiation.
01/2014- Started Tamoxifen
06/09/14-Steriotactic BX left breast calcification-Benign
06/18/2014-completed one year of Herceptin!
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03-13-2015, 09:36 AM
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#9
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Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
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Re: Any advice for Hot Flashes after chemo?
Just wanted to follow-up about my mention of Luvena for dryness.
Back in January, Leclede entered into a consent order with the FDA that allows them to continue to market all their Luvena products so long as they remove the unproved claim (that it's a prebiotic) from the labeling. That's done, and Luvena is widely available.
FDA Link:
http://www.fda.gov/NewsEvents/Newsro.../ucm432505.htm
Leclede Link:
http://www.luvenacare.com/letter.html
The body wash is also nice.
Note to Coux re pine bark: I'll try to figure out what else it is I'm taking. It seems to me there's something that makes the pine bark work even more effectively, but I don't remember which something it is. I'm glad you're having some success with it, but I do hope it starts to work a little better for you. Random relief would drive me crazy, because I hate not knowing what to expect.
__________________
2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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