It's Getting Closer
Well, I had a visit with the oncs office that will be supplying me the Tykerb.
The co-ordinator had her "telephone interview" last week with the Glaxo people and I went in on Thursday and signed my consent form - Yippeeeee
I had everything explained to me in depth, had my blood work done and had an Ecocardiogram on Friday and am scheduled for a CT on Monday. I will meet with them again on Wednesday and hopefully they will have the drug by Thursday.
I can't believe I can be so anxious to actully begin on Chemo AGAIN but of course after 6 weeks off of chemo and progressing tumors, I see why.
I do not forsee any reason at this time that the Glaxo people will not allow me to have the compassionate use for this but until I actually receive the drug, I am still keeping my fingers crossed.
I am sure that those of you out there that are working with an office that is trying to obtain qualification for the EAP, will be seeing results soon.
Will let everyone know when I start.
Good luck to everyone.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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