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07-02-2006, 07:51 PM
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#21
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Senior Member
Join Date: Sep 2005
Posts: 90
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Congratulations!
That's wonderful. You certainly deserve it. We are all grateful for what you've done and continue to do. Thank you, thank you, thank you! - Carol
__________________
Carol
Lyons, CO
dx June '05 at age 55
Stage 1, 1.5cm
ER+++, PR--, HER2+++
Lumpectomy, A/C, T/H
Herceptin stopped due to low LVEF (35%)
2010: NED, but continuing major chemo brain injury
www.BeyondChemoBrain.com
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07-03-2006, 06:20 AM
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#22
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Let me add my congratulations! An honor well deserved. Thank you for your continued hard work for us all.
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07-03-2006, 06:59 AM
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#23
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Guest
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Congrats
Congratulations. This is a wonderful. You deserve it. Mary Jo
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07-03-2006, 07:41 AM
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#24
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Congratulations
Very well deserved
RB
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07-03-2006, 08:34 AM
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#25
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Joe and Christine-
What a great tribute and deserving acknowledgement for all you have done for us. Education is so powerful, and I am so grateful to hear of the cutting-edge technologies that I read about on this site.
Many thanks...
Shell
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07-03-2006, 10:41 AM
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#26
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Senior Member
Join Date: Jun 2006
Posts: 44
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You Two Homered A Big One!
Congrats, Joe and Christine, on a well-deserved honor and award. Your achievement is celebrated by all of us in the Her2 community.
Love,
Vicki
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07-03-2006, 10:46 AM
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#27
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Senior Member
Join Date: Sep 2005
Posts: 95
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Joe and Christine,
You are both true heroes to so many of us. I am just happy that your accomplishments are being duly publicized.
Thank you for all you do and congratulations.
Cynthia
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07-03-2006, 11:15 AM
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#28
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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This Award is tip of the iceberg
The thousands of hours Christine and Joe have spent working on this forum, networking with doctors and drug companies, consoling and advising members of this board can only be imagined!
And the truly awesome thing about them is that there is NO EGO involved on their part - this all comes from the goodness of their hearts.
We do not know the amount of frustration and other behind the scenes glitches they have to deal with. The MERE FACT that they have kept it all going speaks volumes.
May God bless them in every way.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-03-2006, 11:46 AM
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#29
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Joe and Chritine,
You certainly deserve it! what a wonderful wonderful site with great members.
Have a blast!
sarah
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07-03-2006, 11:51 AM
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#30
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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So glad your being recognized for the wonderful and hard work you've done!!! I've been singing your praises for a bit now, but you really don't want to hear that!!!! Congratulations....
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-03-2006, 09:52 PM
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#31
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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thanks so very much - glad someone knew of this way to honor you! Congrats...kim
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07-03-2006, 10:02 PM
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#32
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Thank You for setting this up! I know it is more work than I can imagine. BB
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07-04-2006, 02:44 PM
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#33
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
Congratulations !!!! kat in the delta
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07-04-2006, 09:09 PM
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#34
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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I feel humbled just knowing and having met both of you. No one on the planet deserves this more than the two of you. I'm sure Linda would agree!
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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07-05-2006, 04:17 AM
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#35
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Guest
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You are both so deserving of this...you have both brought much information, peace, love and hope to so many people.....THANK YOU BOTH!!!!!!!!!!!!
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07-05-2006, 04:18 AM
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#36
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Whoops...the last reply was from me, thought I was logged in.....anyway a big thank you to you both!!!!!!!!!!!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-05-2006, 08:00 AM
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#37
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Dear Christine and Joe,
I just knew you two would be chosen! I only wish that I could have made it to the ceremony. Diana Schenker phoned me personally to let me know that you had been selected, and that just made my day. You two have really made a huge difference in my life and just hope that I get a chance to meet you in person one of these days.
Thank you just doesn't seem adequate.
Big Hugs from Kim in CA!
P.S. I have not been on the website for quite awhile, as I was still having troubles with computer attack warnings and then my computer freezing up. I finally had some time to really dedicate to solving the problem, and I think it's OK now. I can be very technologically challenged sometimes, and was about to call in the Geek Squad, anything to get back to my Her2 connection!  |
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07-05-2006, 10:09 AM
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#38
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Congratulations. You are both so deserving. Yes, I did nominate you, along with many, many others. Be well!
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07-09-2006, 05:52 PM
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#39
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Your time and dedication is invaluable
Dear Christine and Joe,
You two have been going to bat for us ladies for years now. It seems like we all have a cross to bear from time to time and you certainly have had your own struggles, which you have continued to surmount. How grateful I am that you have chosen to share your own journey and use it as a springboard of support for the 1000's of us around the world who are fortunate enough to relate and learn from you both.
Christine, brave and gentle soul who continues to stand toe to toe with her cancer and not only win, but reach out and support the rest of us.
Joe, dedicated, fiercely loyal and supportive soul who not only supports and loves his wife but also reaches out to support the rest of us along the way.
How fortunate for us all that you are rightfully recognized and honored.
Love Kim from CT
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07-09-2006, 06:14 PM
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#40
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Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 31
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Congratulations...what an honor! Thank you for this site
Warmly,
Judiek
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