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06-06-2006, 07:59 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Dear Mary Ann,
Good grief...I am away from the boards for a few weeks and you are in a crisis! I was horrified to hear from Becky, Joe and Christine at ASCO this week that you are struggling with AML. I got home from Atlanta tonight and have done nothing but read through your posts and updates. And now, here you are away from hearth and home;; away from your kids...overwhelmed and isolated in that hospital.
I am grateful to hear your ask for prayers and felt comforted by the outpouring you are getting every day from your angel sisters on this site. It is times like this, I think, when we stop walking with our Lord, but instead let his arms carry us; supported by prayers from the multitudes who love and care for you.
How are you staying in touch with your children, Mary ann? How are they doing with all of this?
I am going to bed tonight with you on my mind; I will ask God to hold you so close so that you can get some much needed rest from worry. I will ask God to help you focus on your inner Amazon and help you heal beyond your wildest dreams.
You go girl, we are with you every step of the way...
Love Kim from CT
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06-06-2006, 08:11 PM
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#22
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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In our prayers...
Maryann,
Keeping you in my thoughts and prayers. "Be strong...Be of good courage"
Sassy
________
VAPOR INFO
Last edited by sassy; 08-22-2011 at 08:47 AM..
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06-06-2006, 10:13 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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what some amazons won't do
to get into the RITZ! Everyone will want to get in there...
Maryann, I don't post often but have been lurking for a couple of years and am always uplifted by your spirit, and your fight. I think you are just amazing! Thank you for sharing.
I couldn't believe whan I read your post - you really did not need AML on top of everything else! Add my prayers to the chorus.
Chris
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06-06-2006, 10:51 PM
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#24
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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Maryanne,
So glad to see your update. Good luck tomorrow and focus on those green trees outside. Soon you will be there too and they will feel so special, so green and so alive. You are in my thoughts and prayers. I hope you get a good night's rest.
Patricia
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06-07-2006, 04:29 AM
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#25
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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MaryAnne
You never cease to amaze me with the grace and bravery you have for an obstacle that comes...and this is just another that you are enduring....I wish it was just a bad dream and everything was OK, but it will be....you give strength to all who read your posts, and we all admire you for all you have gone through and always with a smile...you are one of the people who see the beauty around you no matter what....I am so glad you have a computer...you wont feel so isolated...we are all just a keyboard away.
Sending you warm hugs and many prayers.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-07-2006, 09:42 AM
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#26
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Dear MaryAnne, What an incredible lady you are! You deserve whatever luxery that expensive "resort hotel" can offer! You don't know how much it means to all of us to have you post inspite of all you are going through. We are all sending loads of love, positive imagry and prayers your way! I will be gone a few days but will be watching for news from you when I get back. God bless! Hugs, Tricia
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06-07-2006, 10:45 AM
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#27
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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MaryAnne, great to hear from you. Love your spunky attitude! Hope everything goes as smooth as possible for you. Keep posting, it's great to hear how things are going for you.
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