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Old 11-20-2008, 12:22 PM   #21
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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....here a tweak, there a tweak, everywhere a tweak-tweak. You always inspire me with your upbeat attitude and pleasant disposition towards this disease. I gather strength and laughter from everything you relay to us. I picked today to sit and reply to this post just for that reason. Today I needed to be inspired and get another belly laugh while relaxing thinking of you specifically.

I am so happy to hear how things are working out for you, well, besides that fourth pill!! Again, you are paving the way for others, Ed being one of them. This combo appears to be working wonders for you and my heart is so full and happy for you.

As far as the mange goes, I will have to make Ed laugh when he gets back up, he really can relate to that. I will have to get stocked up on the toilet supplies as I heed this as a warning! LOL.

Lots of love Sweetheart, today and always>>Believe51

PS: Thanks for giving me ideas of what to send you for the holidays...tehehe!
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 11-20-2008, 12:25 PM   #22
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Smile Hey!

Hey, WomanofSteel, I guess warped minds think alike!! LOL! I had this thread opened for a while and you replied during that time.

That too made me laugh. Love you also!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 11-20-2008, 05:18 PM   #23
Bill
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Hi Hucklebuck! I'm glad things are working for you. As far as the hair thing goes, it's not all it's cracked up to be. I shaved my head a year ago for Nikki as a 'gesture' of solidarity, now I do it on a regular basis. I've discovered many benefits to having no hair. I was going to list them here, but I think maybe I'll start a different post instead. Brenda, keep in mind, gal, that when the wind is whipping around you there's nothing to sting your eyeball when you're trying to focus.
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Old 11-20-2008, 08:37 PM   #24
Vic
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Your 'tude is in perfect working order!

Hi Brenda,

You've got some good things going for you and, hey, the mange look would do well here in L.A.-O.C. for a change, instead of the plastic look. I like Lee's spin on the various ways you can label your new image. You are unique and one-of-a-kind and I'm sure you are workin' it.

As for your tumor markers, they are better numbers than mine and low is good (my last CA15-3 was 38), so you're on the right track.

Good you're checking in with your cosmetic surgeon and your "girls" will be fine.

Your last paragraph about getting out the door and exercising was so motivating to me. I can think of so many excuses, so THANK YOU for kicking my butt on this. My workout clothes are out and ready to go for tomorrow.

You rock, sister. Your tweaks are just what we needed!

Vic
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Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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Old 11-21-2008, 12:57 AM   #25
harrie
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Brenda, I am happy to hear of your good news!! Right on.....

And dont we all have those tweaks here and tweaks there....

When were your implants initially put in? Mine have been in for 14 months and so far so good.

Take care.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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