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Old 01-08-2007, 06:41 PM   #21
Adriana Mangus
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Location: California
Posts: 668
Wink Mets to rt lung
Sherry: No, I did not have mets when first diagnosed in 1994, rt side bc. I had lumpectomy+chemo+radiation. The cancer came back in 2003 to rt lung. DIscovered through X-ray due to coughing. Received Navelbine+Herceptin. Have an appt with onc this Wednesday 1-10- and will start xeloda immediataly due to tumor growing back. I have had a great life and great response to navelbine+herceptin and I expect the same with xeloda.. I have a great life, and do not think too much about the future, for me it's one day at a time...Why worry about something you have no control over it..Whatever happens it's going to happen no matter what...When your job is done on Earth, and no one knows for sure when that will be..then one can only pray that it will be an easy and painless departure from it all. I trust God and no one else...I'm content with my life, it does no matter that am battling this disease..I look forward to many more years of Good Life...Stay positive.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
 2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 01-08-2007, 06:44 PM   #22
michele u
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Ron,
my onc just told me last week that he has had NO ONE recur on the Herceptin trial. Meaning the trial where you get Herceptin for a year after A/C and Taxol. He said even the gals that did NOT get the Herceptin have not recurred. He thinks it's the Taxol 12 weekly doses that might be doing it. given that, your wife has a great chance!!
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dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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Old 01-09-2007, 09:35 PM   #23
julierene
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Joe, I have long felt that these statistics aren't as reliable for us who are very responsive to Herceptin. Do you know something we don't?
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 01-09-2007, 09:39 PM   #24
Joe
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There is a study currently underway called "RegistHer". It is a long term study on HER2 positive women. Unfortunately we won't have any results for a few years.


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