HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 12-05-2006, 07:58 AM   #21
VirginiaGirl
Senior Member
 
Join Date: Oct 2006
Location: Fredericksburg, VA
Posts: 93
Dear Lisa, hoping today finds you feeling better, stronger, and very "un-poop" like. Sending prayers your way.
God bless
__________________
Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

VirginiaGirl is offline   Reply With Quote
Old 12-05-2006, 09:01 AM   #22
Joy
Senior Member
 
Joy's Avatar
 
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
thinking of you

WE miss you! Get better fast okay! I'm sending you lots of non-poop energy!
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
Joy is offline   Reply With Quote
Old 12-05-2006, 06:22 PM   #23
Vanessa
Senior Member
 
Vanessa's Avatar
 
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
Hi Lisa,

Sorry to hear you are feeling crappy, hope you get to feeling better soon, so you can enjoy the season and just so you can feel better. You are in my thoughts and prayers.
Vanessa is offline   Reply With Quote
Old 12-12-2006, 08:00 PM   #24
sherri
Senior Member
 
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
How are you doing Lisa? I hope you feel better.
sherri is offline   Reply With Quote
Old 12-13-2006, 09:59 AM   #25
MGordon
Senior Member
 
MGordon's Avatar
 
Join Date: Nov 2004
Location: Colorado
Posts: 131
Hello Angels!

Until I discuss this more with Lisa I am not going to say too much but just enough for you all to know what is up.

As of Monday we have stopped all chemotherapy and we have "admitted" Lisa into home based hospice. She needs all your positive energy, prayer and thoughts.

When Lisa "approves" me posting more I will - promise!

Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
MGordon is offline   Reply With Quote
Old 12-13-2006, 10:21 AM   #26
Mary Anne in TX
Senior Member
 
Mary Anne in TX's Avatar
 
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
To Lisa love and light!

Tons of love and prayers to both Lisa and Mel! I wonder sometimes how our husbands endure the twists and turns of this beastly disease! May God comfort and guide you both!
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
Mary Anne in TX is offline   Reply With Quote
Old 12-13-2006, 11:06 AM   #27
Barbara H.
Senior Member
 
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
Hi Mel and Lisa,
My heartfelt thoughts are with you.
Barbara H.
Barbara H. is offline   Reply With Quote
Old 12-13-2006, 11:07 AM   #28
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Saddened at this moment

I know Lisa would not like that, but we have been together on this board for something over 3 years - maybe 4 by now. I have been missing her quips and sage advice she is so good at.

May the Loving Presences (her father and others) stand by and keep her company. I am sure your home will be filled with them and the comfort they provide.

Let her know she has {{{BIG HUGS}}} from me.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 12-13-2006, 12:19 PM   #29
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
please give Lisa my good thoughts that I'm sending her way.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 12-13-2006, 03:03 PM   #30
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
Praying for Lisa and Mel. So upsetting to hear when someone is not doing well and has reached the stage of needing hospice. I pray for her comfort.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 12-13-2006, 03:52 PM   #31
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Unhappy

Lisa

Remembering you both in all my prayer's and
I'm sorry to hear this news.
God bless
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 12-13-2006, 06:49 PM   #32
Julie2
Senior Member
 
Join Date: Sep 2005
Posts: 556
Lisa is in my thoughts. I am hoping she wii have a miracle.

Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
Julie2 is offline   Reply With Quote
Old 12-13-2006, 08:38 PM   #33
kimber
Senior Member
 
kimber's Avatar
 
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
I am deeply saddened. God bless to you both -kim
kimber is offline   Reply With Quote
Old 12-13-2006, 09:03 PM   #34
Kimberly Lewis
Senior Member
 
Kimberly Lewis's Avatar
 
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
multiplied love and light back to you!

Hi, Just wanted to add my thoughts and prayers are with you! Thanks for all your posts- you have made a difference here.
__________________
Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


Kimberly Lewis is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:41 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter