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Old 11-14-2007, 03:03 PM   #1
Andrea Barnett Budin
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Wink A Bodymind With A Spirit -- That's Who We Are!!


Gin, I love that your *interest* is LIFE. And your occupation RADICAL SABBATICAL! You are a beautiful Spirit! With a bodymind! Love your perspective...

I thought Dana, w/her great attitude and love of her son, had the need to go and be with Christopher. They are true Soulmates! A beautiful love story. Inseparable Spirits. I believe her son is being well taken care of... And the two lovers are together for sure.

Gina, I am sorry that your husband passed on in '98. When were you dx? And when did you recur? Is there a connection between the pain of the loss and bc do you think? Surely, a most difficult and traumatizing event to cope with...

With loving energy...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 11-14-2007, 03:40 PM   #2
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I took Effexor to remedy the hot flashes. It really worked for that but I too felt the horrid dizziness, shakyness and problems remembering stuff. I started to cut back on the Effexor VERY gradually because of the side effects. But, will say that when I got down to a half of a pill I did quite well on them. By then however I had my mind made up that I was going to ween off completely. Most Px's are one size fits all and when it comes to these powerful drugs, I believe it needs to be more tailored. Everyone metabolizes differently.
Now I know that if I ever take another anti-depressant, I will work my way up the amount rather than the other way around.
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Old 11-14-2007, 05:12 PM   #3
Andrea Barnett Budin
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Wink I Can't Even See Your Face! Nice *family* Though!!

Dear Mountains, Sorry, I couldn't resist. MTS. How does one relate to that? I have a reallllyyyyy difficult time. Again -- sorry. Multiple traumatic syndrome?? Just doesn't work for me.

Well, anyway -- I took 25 mg Zoloft for yrs. Did I tell this already? In this thread? If so, move on. If not -- got to 50 mg and called doc to say, You need to prescribe a diff anti d cause I am having headaches ev day and I NEVER get headaches and my palms are sweaty and I feel horrible. No, said doc, this is a good drug. I want you to stay on it. I CAN'T. Okay, said he, cut it in half. So I went to 25 mg. I FELT GREAT. For years. Each time I'd go to another doc, which I don't have to tell you is a ridiculous amnt of docs -- I used to NEVER go to anyone but annual OB/GYN for PAP (those were the days!) -- ea doc would ask for a list of all my meds. When I got to Zoloft, they paused and asked for mg. I said 25. They'd pause, put down their pen and stare in to the beyond, saying, You know at that dosage it's probably not working???? I know. You might as well stop it. NO! I FEEL GREAT! We agreed to allow me to delude myself. Only I KNEW I wasn't...

Every one, as you say, is different. NO ONE SIZE FITS ALL. Including, by the by, HGB!!! For ME 13-15 is NORMAL. Others, at 7 feel great. I collapse below 11!!!
Those NORMAL RANGES don't even apply. I fall beyond the *range*. So what??? I'm just saying...
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 11-14-2007, 07:17 PM   #4
Joanne S
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Interesting, but I really hope we get some more responses----over 400 have read this post alrealy, but only a mere 20 some responses were posted.


As I mentioned previously, I allowed myself to be stressed and depressed for a few years without medication---because I thought I was entitled as my daughter was terminally ill and died. I have been on Zoloft for several years now, too bad for my mental health, I didn't start taking it alot sooner. Good question, was it the severe stress, antidepressants, both or neither that had any effect on my bc.


I certainly hope none of you are too embarassed to admit you were on antidepressants. I am very curious at the possibility of it possibly having effect on BC risk. Thanks for your responses ladies!

Joanne
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Old 11-14-2007, 07:28 PM   #5
Andrea Barnett Budin
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Wink Just Me...

It's just me again. Same message, but different... I do not believe the anti d's cause ca. I believe the toll of the chemical alteration in your bodymind causes T cells to plummet (actually proven in many studies -- linked w/stress, distress, pp out of work, loss of loved one, etc.). This leaves your immune system not in good fighting position and open/prone to infection and malfunction/dysfunction. Ca is out of control cells run amok, w/no NKs (natural killers) around to hold them off. Joanne, please read Leslie's fab links. Read my post in this thread re this. Step back. Become The Witness. The Observer. Change your perspective a bit, from a distance. It is an astounding realization that can EMPOWER you and change your life forever...

I haven't adequate words to say how sorry I am that you lost a daughter. As I first read your words something clutched at my heart and choked it. I gasped. How utterly devastating such an experience has to be. Can you ever recover? Surely Zoloft and the like will assist you in getting your footing and embracing Life with gusto, as I have no doubt, your daughter wishes for you. You will put your arms around her again. For now, live for her, in memory of her, as a tribute to her. That is the best you can do. With much loving, healing energy sent from me to you, with my deepest respect for you and all you have had to endure...
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 11-14-2007, 08:32 PM   #6
Joanne S
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Smile Hey Just Me Again...

Bless you Andi!

Oh ---I hate it so much when I type a long thought out response and somehow manage to lose it.

Here's a short version cuz I tired and frustrated now.

Thanks for responding to my post about depression and anti-ds, and for your suggested reading. I will read them. What enthusiasm you have!

I can relate to your dosage amount. When I started taking Zoloft many years ago, I could only handle 1/8 of the smallest dosage. During some of life's chuck holes, my brother's leg amputation....I've had to up it to 250 mg. I've been mostly on 100mgs for the duration.

I handled my initial dx of BC very well and had a very positive attitude during the first 9 months. Several of my doctors recommended uping my dosage to 200 mg again to aid with my chest pain and depression from the frustration of dealing with the pain. (Doing better now with the addition of Neurotin and physical therapy.)

Thank you so much for your very kind,compasionate and supporting words.

Wishing you continued improvement and wellness,
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-14-2007, 08:51 PM   #7
Soccermom
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Prozac, Celexa, or Lexapro since 1993 ( PTSD resulting from an assault in 1990) dX 2004 since then Prozac or Cymbalta
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Old 11-19-2007, 05:47 PM   #8
R.B.
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Thought provoking.

RB


http://www.lipidworld.com/content/3/1/25

"In a cohort of 380 Australian women, plasma DHA was investigated at 6 months post-partum. Logistic regression analysis indicated that a 1% increase in plasma DHA was associated with a 59% reduction in the reporting of depressive symptoms [24]. It is well known that during pregnancy there is a significant transfer (up to 2.2 g/day) EFAs to the developing fetus [7]. Increased risk of post-partum depressive symptoms has recently been associated with a slower normalization of DHA levels after pregnancy [25]."
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Old 11-20-2007, 06:41 PM   #9
dhealey
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I have never been on any type of antidepressant before or during treatment. I try to handle my stress through exercise. Walking, light weight lifting, yoga, pilates. This approach seems to work for me. I often wondered if the 7 years I took birth control pills had anything to do with my breast cancer particularly since I am ER/PR positive. My mother also took birth control pills for about 7 years. She also was ER/PR positive.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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