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Old 06-04-2012, 05:20 PM   #21
caya
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Location: Thornhill, Ontario Canada
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Re: TDM-1 in the news

Big news story here about TDM1 today on Global TV news ( my younger daughter Cassie works there on The Morning Show) - Apparently one of Toronto's big cancer hospitals, Sunnybrook, is involved in the large 900 woman worldwide TDM1 clinical trial, and this was reported here on the evening news. Very very promising results, the dr. and health reporter both said that once the US FDA approves this wonderful drug, it will be available to all.

Hope the FDA moves quickly, so that all our Her2 sisters (and brothers) can have access to it.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 06-04-2012, 05:21 PM   #22
phil
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Re: TDM-1 in the news

Our T DM-1 story , Part2 , aired on Boston Ch. 5 ABC, wcvb.com , sewrch under herceptin t dm-1 or lorraine heidke-mccartin. Too short , but every bit of pr counts. Fern, This FDA hates this negative pr, we need to keep it up !
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Old 06-04-2012, 05:26 PM   #23
Laurel
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Location: Hershey, PA. Live The Sweet Life!
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Re: TDM-1 in the news

Fern,

I loved your interviews!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 06-05-2012, 03:05 PM   #24
bejuce
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Re: TDM-1 in the news

Hi Fern,

Just saw the interview, thanks for posting!!!! I met Dr. Hurvitz at a DoD research grant panel last year and loved her. She is so passionate about helping her patients, you are lucky to have her by your side. She got me an appt. with Dr. Slamon and I feel honored and privileged to have met him. A wonderful team you have there.

Good luck with everything and may TDM-1 continue to work for you!!

Marcia
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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