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Old 01-17-2008, 04:24 PM   #21
goops
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I hope this drug will be what it takes to get rid of your cancer. Best of luck to you and to the other people using this.
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May 2007 - Stage 3A, 12 positive nodes, her2 positive
July 2008 - Stage 4 - Liver Mets

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Old 01-18-2008, 05:07 AM   #22
sarah
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We have a friend about to start on this drug, so I also would like to hear more about Iamtheadvocate's case. Inflammatory bc? ER+, ER- etc. I am sorry for your loss, a mother is so special and important.
sarah
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Old 01-18-2008, 11:03 PM   #23
Joan M
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Sheila, Hang in there! Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 01-19-2008, 11:59 AM   #24
Mary Jo
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Hi Sheila,
Just a note to say hi, send love and encouragement and hope you are feeling well.

Love,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 01-23-2008, 09:53 AM   #25
iamtheadvocate
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Hello everyone, iamtheadvocate here again.

I will be posting more information about our situation on here for you to read. I do have a question for everyone on here mainly for the stage IV's. Does anyone on here fighting their cancer with this drug have spots or legions on their liver? If so, what are your side effects? How is the drug effecting you? Thanks for any insight.

- theaddy
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