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Old 11-24-2007, 10:13 AM   #21
Leslie's sister
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Join Date: Aug 2006
Location: So California
Posts: 223
Prayers

Michelle:
You lots of great suggestions here. I can't add any more incite. Just wanted to let you know that you have prayers here in So. California.
Lisa
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 11-26-2007, 10:59 AM   #22
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Unhappy Oh Michelle....

Morning My Shining Star. I was sad to hear your post because as you know Ed is in that same spot. The Taxotere/Herceptin was working and we were almost at NED until the damn cancer outsmarted the regime. Forget the Tykerb/Xeloda, his numbers skyrocketed and there was progression (we know that it DOES work for some and those it does not work for, IT DOES NOT WORK!!)=that goes with any regime though. I liked the fact that it was working for you at one point. Try for the second opinion. Do not let anyone rob you of HOPE because we are your friends and WE KNOW THAT YOU HAVE NOT EXHAUSTED YOUR OPTIONS YET!!!

Do not lose hope just yet My Star, there are many combinations that you have not tried yet. There are many clinical studies about to be born to the public soon. Remember that I love you and miss your voice. I have not spoken to you in while because I thought you needed some time to find out answers and what direction you were headed to and now I realize that was a mistake (and I should have found out by you, not your post!=my bad). I am so sorry that you had to find out news like this before the holidays again. We will be right here for you, but I guess I knew that once I read your post. keep heart. We will speak soon.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 01-23-2008, 03:58 PM   #23
runtolive
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Join Date: Nov 2007
Posts: 210
get yourself back to the doctor and ask him or her about TRASTUZUMAB-MCC-DM1.. its herceptin plus a toxin to kill the cancer.... its in phase 1 and phase 2 trials..
phase1 .. once a week.. and phase 2 .. every 3 weeks... lily , barb , marsha, and chrisy.. are all on this and doing great.. barb has bone mets that have totally stopped hurting...

runtolive
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