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Old 08-21-2007, 09:48 AM   #1
doh2pa
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I'm blessed with a lot of joy lately, so thanks for starting this Brenda. I'm joyful because:

1. I've reached my first "dear Lord let me stay alive long enough to" goal of seeing my oldest son off to college. We leave next week and it's sad but I'm so happy about the young man he's become and so excited for him as he's about to begin this wonderful journey.

2. I have a man who has loved me for 25 years and we still laugh and dance!

3. I have amazing friends who share the good times and bad but we laugh a lot more than we cry!

and last but not least.....

4. My eyelashes are growing! (sometimes it's the little things!)
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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Old 08-21-2007, 10:20 AM   #2
hutchibk
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I am headed out to pick my 'better half' up at the airport... he travels a lot with his work and is sometimes gone for 2-3 weeks at a time. What a blessing and a joy and a treasure he is in my life! My 12 year old 45 year old boy! LOL

He's a sweetie and brings so much joy to my life. Even when he drives me a little crazy.... you know what I mean.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 08-21-2007, 01:46 PM   #3
lilyecuadorian
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Hey

today ...I went to do a mammogram for my left breast ( the same doctor who find the beast lasat year ) told me .."this time is not a bad news is a good news ...the calcification that you have last year still the same and are bening ...so let me schedule for next year on Aug" do you hav any question ? just look at him smile and said THANK YOU ....
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 08-21-2007, 05:09 PM   #4
Emelie
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Joy

for me today was to wake up and open my eyes and to hear the birds singing in the tree outside my window. I thank God every day for allowing me to grace this wonderful place for one more day.
Emelie
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Old 08-21-2007, 06:46 PM   #5
cafe1084
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There is a patient at work who has, since I first lost my hair, believed me to be "Stevie", her stepson LOL. She even introduced me at her birthday party as "...Stevie, the most wonderful son a woman could ever ask for." So, today, I am talking with her and she tugs at my hair and raises an eyebrow at me and says "Stevie, you may want to think about getting a haircut." I didn't realize my hair had gotten so long, because just a few short months ago, I felt sure it would never grow back.

Steph C.
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Old 08-21-2007, 06:51 PM   #6
Mary Jo
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Tuesday Evenings Joy

It is Tuesday evening. I am sitting here relaxing - reading all the wonderful posts from my WONDERFUL cyber friends. Also, my wonderful sweetie of almost 29 years (Sept. 2) and I are leaving tomorrow for a little mini vacation to western Wisconsin in an old fashioned town. We are traveling through a lot of little old fashioned towns as well. I love to do things like that.

Another "joy" moment!!

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-22-2007, 08:40 PM   #7
Catherine
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Licking fake butter

Joy today when I managed to keep my old cat, Biggers from licking my fresh out of the oven bread. More joy when I found him with his head in the tub of fake butter.

Joy to the World, all the boys and girls, Catherine
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 08-27-2007, 08:56 PM   #8
weezie1053
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Smile

Joy today was watching my 5-year old grandson, who lives with me, board his first-ever school bus without any trepidation. This is the same kid who accompanied me in Sept 06 when I had my hair practically shaved off. He wasn't suppose to be there, but his Mother did not come home from a night out in time for me to leave for the hair appointment. He was my pillar of strength on that day as he laughed and giggled. He continues to give me the strength to fight this disease, and he showers his Grandma with love. I am blessed and joyful.

Louise
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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Old 08-27-2007, 09:56 PM   #9
Vanessa
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I loved Andi's dog rescue story from a few posts back. I rescued a 3lb, flea bitten chihuahua from my mother-in-laws farm back in 2000 on Mother's Day. Everyone said he would probably die on the trip home, but I was determined to nurse him back to health. He now weighs 7lbs. and I am rewarded daily for rescuing him. He is my soul dog. He cuddles with me every night. He is my daily joy.

Another joy I received yesterday was both of my daughters calling me to see how I am feeling. Both of them remembered that I have been feeling a little more fatigued lately.

I really get a joy reading about everyone else's joy and sometimes it can be the smallest things. Seeing my 2 grandbabies smile is one of my greatest joys.
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Old 09-21-2007, 08:34 AM   #10
marshbird
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Smile Sweet Joys!

Waking up this morning to the sound of rain on the roof. What a perfect time to cuddle with my husband and count my blessings!
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Old 09-21-2007, 08:51 AM   #11
lilyecuadorian
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Smile good results from brain MRI

Just come from my Doc and he said 2 spot look stable ...no evidence of D so he said is a good news ....he give appoiment for the next 3 months ...but I got some fever I dont know why ??? 100.2 so I did call my Doc and leave the message ...thanks for read ...
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 09-21-2007, 09:34 AM   #12
chrisy
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Well, it is a joy to hear YOUR joys! Lily, how wonderful to get a good scan...and Marie, even better than the massage was getting a feeling of normalcy. And I feel joy for Ed, that he was able to nurture YOU for a change. And Sandy, glad to hear you can stand to read the "joys" column and that you have a little more "time" to attend to more fun things. I tell you, I know I'm getting old when I know where the best public restrooms from Santa Cruz to Tioga Pass.

My joy today is that I'm NOT in the office, and taking my day for me. Of course, I've already checked and send email to work since I'm just not ready for COMPLETE withdrawl.

It's a sort of fall like day here, clouds in the sky (maybe GASP even some rain in the forecast) and I'm looking forward to going out in the world on a weekday. Maybe shopping...maybe go hang out at the coffee shop...maybe work out or go for a swim or in the sauna or jacuzzi. OK, maybe NOT work out LOL but the jacuzzi sounds good!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-21-2007, 12:05 PM   #13
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink I Love The *coincidences*...!

Brenda, First chance I've had to respond to your post about your *accidental* happening upon the building named in loving memory of your niece and nephew. What a joy to come upon such a thing! I, of course, believe that COINCIDENCES are messages. I think you were led to that street, my your brother and sister-in-law. They are with you. You can't see them the way you see Dasher but they are just over your shoulder.

My Chase and Scamper are (Maltese) doggies but I talk to them all the time, as if they can understand me. We rescued our boys when they were 4 mnths old and Chase was especially sick with a devastating case of mange (mites were attacking his immune system and he was losing his battle). I confess -- I am a dog whisperer. The vet was amazed by his turnaround. I used the meds and some supplements (taking a chance, guessing at dosage, like for infants) and I sent healing, loving energy to him daily. Our boys are 4 yrs old now and happy and perky and playful and full of kisses and waggy tails and fun ways of expressing themselves. They are a joy.

My daughter has a Maltese the same age as ours and an old Bichon. Dibs and Dash!

I love the T-shirt story. The tragedy you endured must feel enormously painful, yet from my perspective I see that these people who truly loved one another are still together. And I believe they want you know they are okay and more than just in your heart forever.

Your post was just beautiful. I wish you tears of joy often! And love (and health) and laughter always....
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-14-2008, 12:14 PM   #14
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Thumbs up Believe's Joy

My Mother-in-Law called yesterday to speak with me!!

Today's Joy: She mentioned how much she loves me, what a special person I am. She thanked me for being a wonderful wife and for loving her son. Also mentioned how happy she was to have me as her Daughter-in-Law!

Then she asked me HOW I WAS!!

One of life's joys. I love her so very much>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 08-21-2007, 08:32 AM   #15
Marlys
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I awoke this morning in God's wonderful world where nothing happens by mistake. Believing that makes every day joyful and worth living. I pray for each of you are who are experiencing difficulties in the course of this disease and thank God for His loving care. I also thank him for my beautiful granchildren who love a Grandma that can play video games with them!
I have never had a cat but love the story. I do have Pepe who loves to go for his SSNP walks. (That is for stop, sniff, "n pee.)
This thread is a great idea.
Love & hugs,
Marlys
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Old 08-21-2007, 08:41 AM   #16
BonnieR
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Our newspaper has a daily happy musing. Today's is "Some think that joy is in short supply. Rather, it's in short use!"
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-21-2007, 08:58 AM   #17
fauxgypsy
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We have an ongoing heatwave and drought. A few days ago I looked out my window to the garden. Much to my surprise I saw my half grown kittens playing in the water from the sprinkler. A little thing, but it made my day.

Leslie
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Old 08-21-2007, 09:06 AM   #18
BonnieR
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Leslie, it is so often the "little things" isn't it? Unexpected...
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-21-2007, 10:49 AM   #19
Believe51
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Posts: 2,999
Talking Ooops, I forgot this.....

You know I have been asking for signs lately. I open up the paper and what do I see?

An article with the word:

BELIEVE!!

It was a front page story and the word was smack dab in the center of the page. When I read it (second time this week that word was in the center of something I was about to read) it reminded me of who I am.

I am thankful that in my sad day I was reminded of what is important to me and what I need to do to conquer this all!!

Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 08-21-2007, 12:55 PM   #20
MJo
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Joy is not having to water my garden in the morning because it's raining!!

Joy is starting to deal with 40 pound weight gain and eat healthy again 20 months after diagnosis (thank you weight watchers core program)
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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