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08-14-2008, 06:19 AM
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#181
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Bump...
Just curious...
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-14-2008, 10:32 AM
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#182
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Member
Join Date: Nov 2006
Location: Central TX
Posts: 13
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I was diagnosed 10/11/2005; Lumpectomy 11/22/2005; Path report results: Stage IIB; 1 node with micro cells; Grade 3; ER/PR neg; HER2+++. Treatment: 4 X AC every 3 weeks; 3 X Taxol/Herceptin wkly. Had bad reaction with side effects to Taxol onc stopped took 2 wk break restarted 7X Taxotere/Herceptin wkly. 6/15/06 blood oxygen dropped to 75% rushed to ER all chemo/herceptin stopped put on oxygen for 3 months restarted Herceptin 8/2006 every 3 wks & 33 daily rads to left breast; 9/22/06 Rads completed; 12/4/06 MUGA scan shows dangerous drop in blood flow from 85-50% Herceptin stopped 4 months early and will not be restarted onc feels I have had enough to kill all cancerous cells. No other treatments have Mamo on left breast every 6 months annually on right. So far I have stayed in remission since. I do continue to have long term side effects: Neuropathy all limbs; perm lung dmg caused by chemo; Glaucoma to eyes; Extreme Fatique; Chemo Brain-No short term memory; Multitasking out of the question; have trouble thinking correct words to use etc. But at least I am still in remission just had to retire permanently.
Hugs
Cindy
Live simply. Love generously.
Care deeply. Speak kindly.
Then leave the rest to God
__________________
Hugs,
Lea
DX 10/11/05; Age 53;Lump found during annual mamo
Lumpectomy 11/22/05; Tumor 1.5 CM DX IDC; Stg IIA;1 Sent Node Pos. with multiple microspopic cells, 2nd clear; All Margins Clear Upgraded to Stg IIB Grade III; HR/PR -; HER2 +++
AC - 12/29-2/28/06
TX/HERC 3/7-3/29 Wkly; Taxol discontinued 3/29/06 Alergic Reaction
Taxotere/Herc 4/7-6/14/06 8 Wkly
Herceptin E/3 Wks 8/06 - 3/29/07
33 Rads 8-9/19/06
Clear Mamo Nov 2006
Herceptin stopped 12/4/2006 due to heart damage shown on Muga Scan
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08-14-2008, 12:44 PM
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#183
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Great to read all those positive stories. You rock, ladies!
Lien
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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08-14-2008, 03:56 PM
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#184
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Member
Join Date: Jun 2008
Location: Germantown, Tennessee (but always a native Texan)
Posts: 13
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My signature has nearly everything.
Has normal Mammo 4 mos before dx. Only Ultrasound found tumor. Have done 1 year of Tamoxifen will start an AI soon.
Am getting ready to have my third uterine biopsy.
__________________
Barbara
10/06 Invasive Ductal CA
ER + Her-2 +
Grade 3 Stage IIa, Neg Nodes
AC X 4, Taxol X 4
Lumpectomy , then Re-excision
Radiation X 33
Herceptin for 6 months, d/c due to
decreased ejection fraction
Tamoxifen 1 year now Femara
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08-14-2008, 06:01 PM
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#185
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Member
Join Date: Oct 2006
Posts: 8
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In my 9th year
I joined this group years ago but life takes over and when the format changed I kind of dropped off the radar. I periodically check in and saw this thread. Without too much detail, I was dx in Jan 2000. Left mas, 5/10 pos nodes. E/P -/her2+++. Back then herceptin was not an option. After chemo/rads I was dx with bone mets in April 2002. Lots of chemo/rad and herceptin put me into a chemical remission. After 8 mos of chemo I was put on herceptin with Zometa eventually (after 5 yrs) discontinuing the Zometa.
Since Sept 2003 I have been on herceptin without any other agent and so far I have remained stable. I hate to use the term NED but I have had no progression of disease.
When I was first dx my youngest child was 8. I was told I would probably not see my children graduate from high school. Well. I have seen 3 walk across the stage and my youngest is entering his senior year. My oldest just graduated from college and one daughter has gotten married. Both of my daughters are in college and at this point there is no reason to believe I will not be there to see them graduate as well.
I have been so blessed.
El
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08-14-2008, 06:07 PM
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#186
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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El, Your story inspries me. Now that I have noticed some dimpling under my arm, and even if it is scary news, I know things will carry on and I will have many years. Like you, I have two daughters who have completed college, one is in high school. I plan to see much more of what life has to bring and watch the girls prosper in their careers. I am grateful for this site-seven months ago it frightened me.
Herceptin is saving my life. I see the Dr. tomorrow.
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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08-15-2008, 02:14 PM
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#187
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Senior Member
Join Date: Jul 2008
Location: Murfreesboro, Tennessee
Posts: 48
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My info is in my signature - great idea especially for those of us new to this board to be able to see who is out there and what their expreriences are!
__________________
Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09
BRCA testing done - results NEGATIVE!
cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
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08-15-2008, 03:54 PM
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#188
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Member
Join Date: Jan 2008
Location: Birmingham - United Kingdom
Posts: 18
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Got PET CT Scan results on my daughters 4th Brithday. Now looking forward to celebrating Christians 2nd Birthday on 6th September...
I get more determined with every day...
__________________
Dx 04/09/06 aged 37 (just... by days) at 37 weeks pregnant. Christian delivered 2 days later by CS 06/09/06 healthy (Thank God) at 6lb 14 oz at 37 weeks & 5 days. Lumpectomy 13/09/06 - Left breast - DCIS 16mm, IDC 9mm, Stage 1, Grade 3 HER2 + (FSH), ER-/PR-, 0/14 glands - no vascular invasion.
Oct 06 - Jan 07 Epirubicin
Jan 07 - Apr 07 CMF
May 07 15 rads + 2 boosters
May 07 - Apr 08 Herceptin 3 weekly
Oct 07 1 year Mammo /PET CT - Clear
May 08 - Completed 18 Herceptin
July 08 - PET CT Scan shows "no sinister features and no signs of active disease"
Sept. 08 = 2 yr mammo & Ultrasound - Clear
Mar. 09 = PET CT - Clear
Sept. 09 = 3 yr mammo & Ultrasound - Clear (Ca 15-3 markers remain consistently escalated between 60 & 80!)
Sept. 10 +4 yr mammo & ultrasound - Clear
Aug 11 = PET CT - 5 yrs Clear - NED & celebrating
Aug 12 = mammogram & ultrasound clear....6 years clear
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08-15-2008, 04:08 PM
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#189
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Whynow?,
Adorable children!
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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08-15-2008, 04:34 PM
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#190
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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I was diagnosed 3/07 after "odd" mammo and PEM (PET mammogram)and US guided biopsy. Her+++ ER- PR-
3/07 Bilat mastectomies with recon
4/07 left lymph node dissection-1 pos node
A/C 4 DD
Taxol/ Herceptin
10/07 recon with silicone implants
1/08 nipple recon
Finished herceptin 6/08.
Port out last week
Was able to work and exercise (slowly and not like I used to but did nevertheless)
Last PET/CT 3/08 was clear
Love to wear the little t-shirts and not have saggy boobs
Henny
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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08-18-2008, 08:45 PM
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#191
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Senior Member
Join Date: Nov 2005
Location: Philadelphia
Posts: 144
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Checking In Still NED!
I'm just checking in as suggested. It's been a year plus a couple months since I finished my Herceptin treatment. I am still NED!
Was on Herceptin for 2 years after completing bi-lateral mastectomies, reconstruction and ACT chemotherapy.
Had bi-lateral lumpectomies and radiation to one side only seven years prior to that.
Doing well and again, NED. So, since first diagnosis, now 11 years, since 2nd....4 years!
Bless you ALL!
Ginagce
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08-19-2008, 05:58 AM
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#192
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Just giving an update on "me"...........I am now a 3 year NED survivor.
Is so thankful...
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-19-2008, 06:02 AM
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#193
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Senior Member
Join Date: Dec 2005
Location: Ontario, Canada
Posts: 48
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Thank you for the updates. We all need to hear these stats. I'm still a work in progress but still ticking after 15 years, Aug. 1993.
Hugs
Diana
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08-20-2008, 06:31 PM
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#194
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Guest
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diagnosed 5/02
Stage 3A
6 cm 5/12 nodes
ER/PR +
Her2+
left mastectomy 5/02
6 rounds AC
Arimidex
28 radiation treatments
Sternal Mets 2/04
Carbo/Taxol
Herceptin weekly X52
Aeridia every 2 weeks (still)
Cyberknife Radiation X3
Femara
Started Herceptin every 2 weeks March 2005 (still)
Mets to T1 verterbrae 5/08
16 radiation treatments
Added Flovesant (hormone inhibitor) IM Qmonth
Having scar revision and breast reduction for symmetry on remaining breast Sept 08
Taking it one day at a time...
Cyndy
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08-30-2008, 06:55 AM
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#195
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Senior Member
Join Date: Jul 2006
Posts: 146
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Diagnosis and treatment
Dear Rhonda,
I tried to reply to your inquiry but couldn't get it to work. I have had bc twice, once in 95, had radiation only, then diag again in 2006, agressive Stage IV metastatic as it had spread to bones. I'm responding to treatment so far, had 18 rads on spine which was very hard on me as it affected digestion, esyphogus, etc. Then the onc started Herceptin every 3 weeks which will be on forever. If I stop treatment he said the cancer will definitely come back. By way had partial mastectomy in 06. I also get Aredia every other treatment. It is to strengthen bones which were weakened from the radiation. I know at some point the cancer will come back but am getting discouraged. After two yrs and people ask when will I be finished. The answer is Never! Hope you are doing well, keep me informed of your progress and how you are getting along. I still work part time as that is all onc will let me work, keep benefits thank goodness as disability has run out so am using vac time that I had built up for treatment and dr appts.
ginkott1@aol.com
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08-30-2008, 08:34 AM
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#196
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Senior Member
Join Date: Jan 2008
Location: Virginia
Posts: 116
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approx 2 1/2 yrs out
Before I was dx I had a mammo the month before but it was clear (mammo was performed at same place every yr, for three yrs.) I found the lump myself, had pain in area of lump. I too had a supraclavicular node light up on scan and had the extra rad boost to clavicuar area on left side. Still have issues with arm, radiated area and arimidex BUT these are minor compared to others. I always hold in my heart others struggling w/ disease.
__________________
Melissa
04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin
04/2022 - 16 year survivor!
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08-30-2008, 08:53 AM
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#197
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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I had my mod. rad. mast. 8/30/2005 on my r breast. IBC, stage IIIB. I had 4 A/C, 4 Taxol and herceptin for one year. 5 weeks of rads also, a bolus used every other tx. I am three years out and feeling good.
I am so grateful that herceptin has helped so many of us manage this disease and for some possibly be the cure.
Hugs for everybody!
Lexi
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08-30-2008, 09:24 AM
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#198
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Senior Member
Join Date: May 2008
Posts: 118
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?
I know this is the wrong place to ask this, but I know you are all very smart . I had a masc. 3 years ago, the 2 months ago the second one. They say no blood draws or BP if you had nodes removed. I do have a port, but where do they take the BP. Thanks, Jeanette
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08-30-2008, 05:02 PM
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#199
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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They can put the cuff on your leg to take BP. That's where they put it on me in the hospital. I only had a right side mastectomy, so I have BP taken on my left arm.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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