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05-24-2006, 07:40 AM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 285
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Memorial donations
Although I know Christine does NOT want us to have a memorial page, I would like to see us start a Memorial/Honor fund. Just thinking back recently, we've lost Mary, Janelle, Linda and now Lyn. I'm sure there are others I can't remember.
The funds from the account could be used to market educational materials funds or for some other worthy cause. Maybe to help members who could use a little financial boost. Any body have any thoughts? (Don't yell at me, Christine.)
Love and light,
Lisa
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05-24-2006, 09:45 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Lisa
I was thinking the same thing...some form of rememberence. Or donate to the Her2 support web site to enable all women who have this disease to be able to continue to find the answers, love and compassion among many total strangers that I have received over the years on this board. This board is my lifeline!!!
It would be fitting to HONOR these women who have lost their battle by continuing their legacy of fighting though this site.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-24-2006, 09:55 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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I thought the idea of setting up resource facilites at hospitals, books web access etc, specific information for newly diagnosed etc was a really worthwhile one and maybe something that would have wider potential if applicable.
RB
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05-24-2006, 10:40 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Great idea...
count me in.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-24-2006, 11:32 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Count me in as well! kim
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05-24-2006, 03:43 PM
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#6
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Al is currently renovating a room at the hospital where Linda was being treated. He plans to stock it wth DVD's and educational reading material, that would be a great project.
Unfortunately, we cannot be a conduit for the money.
Regards
Joe
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05-25-2006, 09:44 PM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 285
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Thanks for the info re: Al. But, Joe, why can't we have a restricted fund as part of Her2support.org? Is it a matter of time constraints, Christine's desire or something else? I'm not trying to cause trouble, but rather to honor our departed friends.
Love and light,
Lisa
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05-26-2006, 06:19 PM
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#8
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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"The funds from the account could be used to market educational materials funds or for some other worthy cause. Maybe to help members who could use a little financial boost."
Lisa,
Although the HER2 Support Group has sufficient funds to sustain our operations, lack of funding posses an even greater restraint.
Next week members of our group will be attending ASCO in Atlanta. The total cost to our group for registration, lodging, airfares, promotional materials and literature exceeds $15,000 for the 4 1/2 day meeting. The same for San Antonio in December. I personally would like to increase our outreach program in order to attend more breast cancer functions. Maryann and Becky represented us at the Denver conference last February. We were fortunate to have these two volunteers represent us.
When the HER2 Support Group was first formed in 2001, we made a deliberate decision not to actively solicit funds from our members. We still abide by this decision, but, we would be willing to publish a memorial page to acknowledge donations made to our group on behalf of a deceased member.
As far as financial help is concerned, another online breast cancer group attempted to launch such a fund a few months back. This had led to some serious infighting and much disention among its members. We have in the past forwarded donations made by members to other members and will continue to do this if asked.
Warmest Regards and Happy Holidays.
Joe and Christine
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05-31-2006, 06:52 AM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 285
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Thanks for the reply, Joe. I have a question, though.
You say you'd be willing to publish a memorial page listing donations for deceased members. Would this be an ongoing thread on the Board or a permanent page elsewhere?
Thanks, too, for reminding us of the funds needed to keep HER2support.org afloat. I'll be sending my check as a memorial for our lost friends.
Love and light,
Lisa
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05-31-2006, 12:29 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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I second what Joe said. I'm on the other online group and mixing BC support and information with fund raising and funds disbursement just did not mix.
Things quieted down after the fund was shut down and we got back to the business of supporting each other through our BC journey.
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