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05-02-2006, 07:15 AM
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#1
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Please chime in--for those with low bmi(weight) are you ER+ or ER-
We have previously commented on increasing bmi(weight) being inversely proportional to development of her2 positive breast cancer (ie more skinny people get her2 breast cancer). Here looking at ALL breast cancers they feel it is the ER- breast cancers which are NOT associated with increased bmi (weight). Of those who posted regarding their weight (or lack of it)--could you pipe in again regarding whether you were ER- or ER+. Her2 seems to be a different type of breast cancer altogether, but as they are lumping her2+ER+ in with other "luminal" subtype breast cancers, it would be interesting to see if in our small group of selected (talented, passionate, communicative participants on this board) her2 positive patients low bmi is associated with her2 even in the face of ER positivity.
Just a thought!
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05-02-2006, 07:30 AM
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#2
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Weight
ER/PR- Her2+++
I was thin most of my life. Had extra weight for a couple of years so a year prior to my diagnosis started working w/ weights and lost about 20 lbs. Weight starting dropping quickly right before I found my lump -It was also a very stressful time in my life not sure if that was cause for weight loss.
Mary
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05-02-2006, 07:45 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 39
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Just prior to my dx, I lost 25 lbs. I was not heavy, but started lifting weights and doing a more purposeful workout. I have been mostly thin my whole life, but had gained due to a terrible knee injury. I now consider myself regular slender!! Hope that helps. susan
Her+++ and ER +
Last edited by mom22girlz; 05-02-2006 at 11:17 AM..
Reason: add er status
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05-02-2006, 07:47 AM
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#4
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Susan
you forgot to add your ER status!
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05-02-2006, 08:45 AM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 556
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I am always thin my whole life, even during pregnancy. I am her2+++ and ER-, PR-.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-02-2006, 08:47 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: NYC
Posts: 250
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I was (am) on the low end of normal for my 'ideal' BMI, but not below it.
The tumor that I had was ER+ and PR+.
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com
"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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05-02-2006, 10:01 AM
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#7
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Senior Member
Join Date: Mar 2006
Location: Iceland
Posts: 31
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Lani, you are good in researching.
dx 2002 with er+ tumor, 25+lymphnodes. (tests for Her was not routine then but are now)
rec.2005 stage IV in bones and small tumor in liver, Her++, er+
Was very normal in youth, not fat nor thin. Like most other women found me to fat 30-40 y.o and on diet and a diet. Im thick over stomach, back and arms, but thighs and legs are thin. Always in good shape othervice.
regards Jóhanna
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05-02-2006, 10:30 AM
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#8
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Senior Member
Join Date: Apr 2006
Location: West, TX
Posts: 30
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I was very thin until around 30-years-old. I gradually gained weight over the next 20 years. I lost 50 pounds, and a year later found the lump.
I am HER2+++, ER+/PR-.
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05-02-2006, 10:38 AM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 52
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Although I had a couple of heavy years in college (when I discovered beer), I have always been my ideal weight. I was 110lbs when I was dx. I am ER/PR +.
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05-02-2006, 11:11 AM
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#10
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hormone neg/neg and not overweight
Don't recall if I answered your earlier poll.
I have never been overweight in my life and will be 57 this week. Overweight does not run in my family and neither does cancer.
Wore a size 6 when diagnosed in 2000 and am 5'5" or so. HER2+++.
Have "flabbed out" a bit with all the chemo that ran down my stamina so much and also loss of hormones. I do work out, but not more than 2 or 3 times a week (trying to hold the line) besides normal activity to keep up with a large house and yard. (I am ALWAYS behind on things - but cancer does that to us.)
Last edited by StephN; 05-03-2006 at 02:16 PM..
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05-02-2006, 11:22 AM
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#11
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Member
Join Date: May 2006
Location: Maryland
Posts: 5
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I've always been average to thin, but work out quite a bit as well. ER/PR- and HER+++
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05-02-2006, 12:54 PM
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#12
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Senior Member
Join Date: Mar 2006
Location: Vancouver, Canada
Posts: 39
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I've been thin all my life (I am 37). I have gained about four pounds over the last five years, which I chalk up to changing jobs to a mostly desk job and from the birth of my son.
I am almost 5 feet 8 inches tall and usually weigh about 114 pounds. I am Her2+++ and ER/PR-
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05-02-2006, 04:59 PM
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#13
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Senior Member
Join Date: Oct 2005
Posts: 115
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low bmi er or pr+
low BMI entire life until reached 40 - put on 10 lbs and grew breasts and hips - still well within "normal weight limits for 5'3. Diagnosised at 43 er+ pr+ and Her2+ put on another 10 lbs since starting hormonal treatment (11/05) - lupron and arimidex. Still within the "normal" weight range - Onc suggested weight watchers even though still wearing a size 4 ( barely)- afraid I will be laughed out of there....
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05-02-2006, 06:45 PM
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#14
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi, ER+, 5'7, 135#, slightly thinner than that in 20's and had spells where I'd weigh 5 or so more in my 40's, my winter, holiday weight. But I think the whole range was within normal. I'm having a hard time visualizing a size 4 needing weight watchers. What's your theory Lani? BB
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05-03-2006, 01:26 AM
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#15
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Lani
I am er/pr positive and also her2 pos and am quite thin.I actually lost some more weight prior to my DX last jULY.
Tricia
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05-03-2006, 09:14 AM
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#16
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Senior Member
Join Date: Apr 2006
Posts: 46
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Thin My Whole Life - Until Now
I was always thin, 5' 8 1/2", weight at diagnosis around 120 - 124 lbs.
ER+; PR-; HER2 +++
I was always able to eat whatever I wanted without gaining weight; being on the tall side helped, I suppose. Wore a size 4. I was always, naturally, rather flat-chested and it was unimaginable that breast cancer could afflict me. I thought, I'm embarassed to confess, that breast cancer only struck those who actually had, well, big breasts.
Post everything I've been through I weigh 153. Size 8. Still taking Arimidex which makes me always hungry. Shrinking besides. Now I'm 5' 7 and a half. Thank goodness I was on the thin side to begin with, I guess I still look normal but when I look in the mirror I do see too much weight around my mid-section and in my face. Had reconstructive surgery, L latissimus dorsi since my stomach did not have enough weight to make a new breast. Now my chest matches the rest of me size-wize. Having a larger chest also makes me look a bit weightier.
But I digress. This morning I am happy to be alive and want to keep fighting to stay that way.
Mary
diagnosed: 4/2002 ER+ PR- HER2neu +++
3 rounds A/C
cancer grew on A/C
L modified radical mastectomy - 13 of 13 positive nodes
6 months of Taxotere
1 year of Herceptin
Radiation
Two small brain metastases discovered Spring '05
Gamma Knife 4/2005
Weekly Herceptin resumed
continue on Arimidex
Last week's brain MRI showed only 1 lesion which shrinks from scan to scan
Currently applying to University of Washington's Vaccine Trial
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05-03-2006, 10:33 AM
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#17
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Senior Member
Join Date: Sep 2005
Posts: 414
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My info
I was very thin until I was 12 and from about 20-30. I was overweight when I was 13 and 14 and about right from 15-19 and 30-39 (when I was diagnosed). My cancer was ER-/PR-/Her2+++.
Take care,
Christine
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05-03-2006, 01:14 PM
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#18
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Hi Lani,
I have always weighed about 114lbs and I am 5'5" tall. I am also, ER+ 95% and PR+ 10%.
Thanks ,
Karen
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05-03-2006, 02:31 PM
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#19
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Member
Join Date: Mar 2006
Location: Porter Ranch, CA
Posts: 12
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Thin until the tumor started...
I was a size 6 until 2 years before I was diagnosed. At the time of my diagnosis 8/03 I was up to 162 lbs and size 14 - 5'4". ER-PR-. I am back down to size 4 at 125 lbs, at age 57. Started at stage III and now IV with liver and lung mets (to restart chemo in the next couple of weeks).
Maggie
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05-04-2006, 04:19 AM
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#20
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Senior Member
Join Date: Sep 2005
Posts: 202
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Hi Lani,
I have always been in my ideal weight limit except when I got pregnant. .(and chemo, I climbed up to 155) I am 5'9" tall and weigh 135#. Have been putting the weight back on. Last summer was the lowest I had weighed for some reason, I couldn't put it on, I was even lower then when I was dx. and that was at 129#, last summer down to 124. Yikes. Feel much better with the wt. back on. er-/pr-. (I have heard you put on 10#'s with menopause, is that true?)
__________________
Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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