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Old 04-02-2007, 07:23 PM   #1
Melinda
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Location: Media (Wawa to be exact), PA
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DX in signature........
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DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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Old 04-02-2007, 07:53 PM   #2
mslinda
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Diagnosis in signature. Current status is NED!! Yea!!

Linda
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Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05

"Worry looks around. Sorry looks back. Faith looks up."
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Old 04-02-2007, 11:28 PM   #3
mcgle
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Message for Melinda

Your dx seems pretty close to mine, though my cancer was grade 2.

Never had the Oncotype test, neither do I know the proliferation rate - they don't do these tests in the UK.

Just interested to know what your FISH score was, given that you were IHC2+ (like me). My FISH score was 2.71 (weakly positive), though I received neither chemo nor herceptin - onc said prognostic indicators didn't warrant these.

I am 53 and had my last period 5 years ago. How old are you? Apparently, age comes into the equation.

Mcgle (UK)
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Old 04-03-2007, 10:14 PM   #4
Lori
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Smile

History in signature.
Just had right breast reduction and removal of medi port.
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1/05 Diagnosed at 31 years old
2/05 Partial Mast, 8/18 nodes positive
Stage IIIA,her2, er/pr+, 9/9 Richardson scale
3/05 Chemo Ad/Cytox
6/05 Weekly Taxol/Herceptin
Continued Herceptin for 1yr
9/05 33 rads
5/06 Hyst. and bilat oph. due to susp. cyst on ovary
Tamox then Arimidex now Femara
NED scans every 6 months
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Old 04-04-2007, 06:14 PM   #5
Catherine
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Smile

Age 58 at DX April 06
11 months prior no tumor shown on mamogram, I found in shower by accident
Stage II, ER- PR- HER2+++
Invasive/high proliferation rate
Multifocal tumors (2-3) largest 3.2cm per ultrasound
3 lymph nodes positive, 14 removed
Chemo first: AC/Taxol over 16 weeks
Bilateral Mast Sep 06,33rads over Dec 06
Started Herceptin Dec 06, every 3weeks for 1yr
Feel very good and I am active
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 05-02-2007, 04:51 PM   #6
gin-tx
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Smile Date of diagnosis

Dear Catherine,

I too was diagnosed in April 2006, first bout of BC in 1995. Had been free for 10 yrs. This time it's more aggressive, had biopsy which surgeon thought looked fine. Three days later he called it was malignant, had wider margins done, also bone scan which revealed something on spine. Had MRI, was diagnosed with Stage IV metastatic cancer. Had 18 radiation treatments to spine and lungs. Then began Herceptin with Aredia. Still getting every 3 weeks, last CT was no change but nothing new, due for another next month. This has not been a good week, have not felt so hot. Keeping in contact with onc, trying various meds. Keep me informed of how you are doing. We all need to support each other.

ginkott1@aol.com
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Old 05-02-2007, 05:07 PM   #7
lilyecuadorian
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Location: CHARLOTTE NC USA Home town (ECUADOR) South America
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april 18-07

diagnostic on April 18/06

and the rest is on my signature
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Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 05-02-2007, 05:23 PM   #8
fullofbeans
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Location: UK
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Diagnosed June 06 with BC stage 1/2 two lumpectomies (until clean margin). Aug 2006 stage 4 (liver mets), I beleive the rest is in my signature

Cheers
Kx
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 08-14-2008, 06:01 PM   #9
elcalabrese
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Talking In my 9th year

I joined this group years ago but life takes over and when the format changed I kind of dropped off the radar. I periodically check in and saw this thread. Without too much detail, I was dx in Jan 2000. Left mas, 5/10 pos nodes. E/P -/her2+++. Back then herceptin was not an option. After chemo/rads I was dx with bone mets in April 2002. Lots of chemo/rad and herceptin put me into a chemical remission. After 8 mos of chemo I was put on herceptin with Zometa eventually (after 5 yrs) discontinuing the Zometa.
Since Sept 2003 I have been on herceptin without any other agent and so far I have remained stable. I hate to use the term NED but I have had no progression of disease.
When I was first dx my youngest child was 8. I was told I would probably not see my children graduate from high school. Well. I have seen 3 walk across the stage and my youngest is entering his senior year. My oldest just graduated from college and one daughter has gotten married. Both of my daughters are in college and at this point there is no reason to believe I will not be there to see them graduate as well.
I have been so blessed.
El
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Old 08-15-2008, 03:54 PM   #10
whynow?
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Location: Birmingham - United Kingdom
Posts: 18
Got PET CT Scan results on my daughters 4th Brithday. Now looking forward to celebrating Christians 2nd Birthday on 6th September...

I get more determined with every day...
__________________
Dx 04/09/06 aged 37 (just... by days) at 37 weeks pregnant. Christian delivered 2 days later by CS 06/09/06 healthy (Thank God) at 6lb 14 oz at 37 weeks & 5 days. Lumpectomy 13/09/06 - Left breast - DCIS 16mm, IDC 9mm, Stage 1, Grade 3 HER2 + (FSH), ER-/PR-, 0/14 glands - no vascular invasion.
Oct 06 - Jan 07 Epirubicin
Jan 07 - Apr 07 CMF
May 07 15 rads + 2 boosters
May 07 - Apr 08 Herceptin 3 weekly
Oct 07 1 year Mammo /PET CT - Clear
May 08 - Completed 18 Herceptin
July 08 - PET CT Scan shows "no sinister features and no signs of active disease"
Sept. 08 = 2 yr mammo & Ultrasound - Clear
Mar. 09 = PET CT - Clear
Sept. 09 = 3 yr mammo & Ultrasound - Clear (Ca 15-3 markers remain consistently escalated between 60 & 80!)
Sept. 10 +4 yr mammo & ultrasound - Clear
Aug 11 = PET CT - 5 yrs Clear - NED & celebrating
Aug 12 = mammogram & ultrasound clear....6 years clear
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Old 04-25-2006, 11:14 PM   #11
hutchibk
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Posts: 3,519
dx: Nov '03 @ 43 years old
invasive ductal carcinoma w/ paget's disease of the nipple
Rt side mastectomy w/ reconstruction (simple implant)
10 nodes removed, 1 positive
stage 2B
Her2neu +
ER/PR +
6 treatments TAC, finished May '04
Tamoxifen for a year, then switched to Arimadex

Very early recurrance discovered Aug '05
7 mm spot on muscle under implant
Rice sized tumor in node under right arm
5 microscopic spots in chest nodes
3 microscopic spots in lungs
Aug '05 - discontinued Arimadex
Sept '05-Jan '06 Carbo/Taxol/Herceptin
Dec '05 - added Aromasin
Feb '06 - all scans clear
Mar '06 - tumor markers continued to drop on Herceptin only
Apr '06 - tumor markers at 12, staying steady

Currently on Herceptin every 3 weeks + Aromasin
No apparent Herceptin side effects
June '06 - next Muga and CT

Last edited by hutchibk; 04-25-2006 at 11:38 PM..
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Old 04-26-2006, 01:44 AM   #12
chrislmelb
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Posts: 267
Knew nothing about HER-2 until i heard a lecture!!

Dx Sept 2003 at age 40. "lump"was lymph node with BC on it but no sign of tumor by mammo or ultrasound. Finally found primary after extensive ultrasound, bit of guesswork and several core biopsies.
ER+PR+ HER-2+++. 3/12 nodes involved. 23mm tumor. stage 2B
Sept 2003- partial mastectomy and aux clearance
Oct 2003- re excision but margins not clear
Nov 2003- mastectomy with expander inserted.
Dec 2003- May 2004 FEC x 8. (only one i know who had that many!!)
Aug 2004- expander changed over to silicone
Oct 2004- ovaries out
Took Tamoxifen and then changed to Arimidex last year. Oh my aching bones!
Nov 2005- started late Herceptin through HERA trial.

I think that is all!

Last edited by chrislmelb; 04-26-2006 at 06:16 PM..
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Old 04-26-2006, 03:50 AM   #13
saleboat
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Location: NYC
Posts: 250
Here are my deets,
Jen
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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