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03-25-2006, 10:57 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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Dizziness anyone?
Does any else here feel dizzy a large part of the time? When I try to focus on something in the distance then move my head, I get very dizzy. I, of course, am thinking brain stuff, but thought that was more headaches than dizziness. The only thing I'm on right now is Herceptin - could it be a side effect? Thanks for any insight...
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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03-25-2006, 12:01 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Virginia
Posts: 53
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I sometimes feel a little more dizzy also. It is as you describe, more of a spatial orientation dizziness, occurs occasionally. I do think it is Herceptin related.
__________________
Dx 5/2/05 at age 27, L Mast. 5/11/05
Stage IIIC, 30/34 + nodes, 8x4x3.5cm tumor
ER/PR-, Her2+++ (5.16 FISH)
R prophylactic mast. 3/3/06
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03-25-2006, 01:17 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I noticed it too, and also noticed that the farther into my year of herceptin I get the more frequent I get this feeling.
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03-25-2006, 02:51 PM
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#4
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Senior Member
Join Date: Mar 2006
Location: Vancouver, Canada
Posts: 39
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I just started Herceptin two days ago so cannot confirm that dizziness is caused from that. I did notice dizziness during my first four treatments (that were without the Herceptin). I am experiencing a touch of dizziness today but do not find it much different than before I started with the Herceptin.
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03-25-2006, 04:34 PM
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#6
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Guest
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I am on xeloda and herceptin. Two months ago, I felt very dizzy and suspected I caught some kind of a bug. I told my onc about it and he said to go off the xeloda for that week. Then, the following month, I had the exact same kind of experience with the dizziness, shakiness and headache. I took tylenol and it went away. This time when I told the onc, I said that tylenol worked and he then said that I should stay on the xeloda. I thought it was from the xeloda, but it may be the herceptin. Also, one of these drugs (or maybe the combination of the two) makes me think that I could have a stroke at any time. My head just feels a lot weirder when I'm on the drugs. God Bless- Cathy
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03-25-2006, 05:36 PM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I am having a brain MRI Monday for that very reason...I thought mine was the aftermath from a cold, or possibly a hypoglycemic problem...but it happens out of the blue for no reason, I can be sitting doing nothing or walking..it just hits. I just started getting it and I have been on Herceptin 2 1/2 years now...anyway, I opted for the brain MRI just to be on the safe side...guess I will know after Monday if it is the brain.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-25-2006, 08:28 PM
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#8
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Nice picture Sheila! I think I should get a new one myself. Will think about it a little more. Good luck on Monday will be praying for you. Hugs, Sandy
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03-26-2006, 02:35 PM
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#9
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Senior Member
Join Date: Mar 2006
Location: Vancouver, Canada
Posts: 39
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Well, day three after the Herceptin/Carboplatin/Taxotere combination and I've still got the "dizzies" happening. It would be much better if it would just go away. It's a very strange feeling--feeling almost 'normal' and yet having the 'dizzy' feeling to go along with it. Quite odd. At least with the new combination of chemo I'm not feeling as nauseated. I guess I should stop complaining about the dizziness then, lol!
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03-26-2006, 05:41 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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Thank you all for your responses - I feel better already just knowing I'm not the only one. Good luck Sheila, with your brain MRI - be sure to post your results! I mentioned this to my onc before and he thought it was from a cold I'd had and said if it continues he'd send me to an ENT for inner ear checks... I guess if it keeps happening I'll try again for the brain MRI, although he's already said I don't need one as I'm not metastatic... Trying not to dwell on it too much, just like all of you.
Thanks again
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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03-26-2006, 06:30 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Jen,
I laos get the dizziness now and again, I did get them prior to bc, but now everything is nerve racking. I did have a brain mri and things looked ok.
Sheila, I hope your test goes fine. Keep us posted. Your picture looks great!
Love,
lexi
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