Mickey's MRI

[mickey]

Not good as usual. I dont write much. My severe borderline debilitating lymphodema makes writing next to impossible. I started xeloda and temodar for brain mets in December. After 2 months, there is some progression, but not much. I have already done WBR and Gamma. May do more gamma and have upped the drug dose. Other than lymphodema, I feel great, but I always do.

Mickey, you know I am just sick to hear this... If only.

I can't remember - have you looked at the lapatinib trial?? That would/will be my next step.

Sorry about your arm, too. sometimes everything just sucks big time.

hugs anyway,
xoxoxpattyz

[RhondaH]

I will keep you in my thoughts and prayers. Take care and God bless.

Rhonda

[al from Canada]

Mickey,

Are you still on herceptin?
Al

[mickey]

Still on Herceptin. Saving Lapatanib as a later stone for me to throw at Goliath. Not down and out yet.

[StephN]

Dear Mickey -
Glad you are not feeling the effects of the mets very much. Some small consolation. Lymphedema SUCKS, even the mild case I have is a nuisance - but we have to keep at it.
Also happy to hear that you have some backup plans in place.
Keep us posted, OK?

[mamacze]

Welcome Back Mickey...that lymphedema seems to be a real thorn, I am glad you are typing away for us in spite of it...and pleased to hear you are feeling well...keep us posted on your progress with the xeloda and temodar..
love Kim from CT