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Old 06-24-2019, 11:37 AM   #1
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: Whack-a-mole next...

Welp. Leave it to you to disperse the worst damn news and still make me laugh! You should have been a comedy writer.

Well, f*#k, the news is shit and I can easily understand feeling dazed and unable to fully take the helm. I mean, where to steer the danged ship to keep it off the shoals? Wack-a-mole until you can find some systemic treatment is seemingly the only course.

I do not blame you for being loathe to pour crap into your CNS. Sheesh, sometimes I think these Oncs figure they can scare us to death rather than bother to treat us! You have the balls of 7 men, Flori, so if anyone can toe up to the line for intrathecal infusions, it's you. Still, I do not blame you for not relishing the idea.

Flori, please try to keep us posted. You know we are all here in your corner, scared with you and for you, and wishing we could DO something to pull you from the fire! I have to end now, because I cannot see through my tears. Just keep dancing in that fire as long as you can, my friend, as we pray for healing rains.
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 06-24-2019, 01:09 PM   #2
donocco
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Join Date: Oct 2013
Posts: 474
Re: Whack-a-mole next...

Flori

If you don't want anymore traditional treatment you could try one of the Alternative clinics in Southern California that treat cancer with diet and vitamins
that reduce inflammation. I know there is one in Costa mesa, but they exist in other cities in Southern California. I read the results of some of these treatment and have to admit Im impressed. Hope this helps a bit.

Paul.

Ps. Just an afterthought. As far as oral Lipoic acid goes it might be a good idea
to separate taking the Lipoic Acid from divalent metals like zinc. Lipoic acid appears to be a metal chelator. Believe it or not I reads this in Hulda Clarks book " a Cure for all Cancers. She used Lipoic acid quite frequently with her patients. After reading this I did some research on it and she was correct. The research on Lipoic acid indicated that it inhibits Nuclear Factor Kapa Beta which when activated acts in a very strong way to enhance the survival and growth of cancer cells. Interesting.
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