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Old 10-15-2016, 01:11 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: My Husband calls it my onc's victory lap...

Hi Ceesun! I am so happy to read the good news.
Ixempra might be an additional weapon for me.
I will post later about myself. Right now it is complicated.
Why do they want to do radiation to the lungs? What are they aiming at? If Ixempra is doing the job, shouldn't they save that for later?
Maybe there are more women than what we think who have non HER2 tumors after some time and just don't know it. If they have no biopsy of the tumors that do not respond they continue to try Herceptin or anti HER2 treatments but it is not enough. This is only my personal thinking. No DR gave me a clear explanation yet.
I hope the last Ixempra infusions will wipe everything out!
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 10-16-2016, 07:33 AM   #2
Ceesun
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Smile Re: My Husband calls it my onc's victory lap...

Good Morning Friends, just to clarify a bit the radiation according to the oncologist and radiation oncologist is to "clean things up" as I am told. My oncologist took me off herceptin with plans to add back in later but I guess the Ixempra did a good job going solo....and I think he might add it back later. I await the call now from radiation oncology as they have done my simulation etc. I saw the oncologist last week and he said you might be able to stay off chemo for a while...oh, how I wish! As far as biopsy reports both lung tumors express her2. On another note, does anyone find all of the pink October stuff a little disheartening...too in your face? I wish it didn't bother me but it does...Love to all, Cathy (Ceesun)
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