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Re: Please post your two cents on Herceptin "side effects" real or perceived!
Not sure if this thread is still being monitored but wanted to put my two cents in. I was re-diagnosed with er-/pr-/her2+ MBC in May of 2015. I did six months of weekly Taxol/Herceptin/Perjeta. Then six rounds of radiation. Now on Herceptin/Perjeta every three weeks indefinitely. All told I have been on Herceptin/Perjeta for a total of 16 months. M y side effects are below:
1) more at to get infections from hangnails, pimples etc.
2) Achy joints, feet, ankles, and legs
3) issues with runny and crusty nose
4) diarrhea for the first couple of days after infusion
5) Increase in pimples and acne (I'm 46)
6) Memory issues
7) slight depression
8) lack of sex drive (Worse than when I was on Chemo)
9) Vaginal dryness
10) Charly Horse cramps in my legs and feet on an almost daily basis
11) Slow hair re-growth
Planning on discussing these issues with my doctor this week. not sure there is much they can do. I do need to start working out. I am p0lanning on adding yoga and walking to my schedule this week to see if it helps.
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11/1/12- Biopsy results confirm Breast cancer
11/2/12- Diagnosed with ER-/PR-/HER2++++ Invasive Ductal carcinoma Stage 2A
12/5/12- Port Surgery and Sentinal Lymph Node Biopsy
12/13/12- Lymph Nodes Biopsy is Negative!! First Chemo Treatment TCH
03/27/13-Last Chemo!
04/02/13-PET/CT Scans, Breast MRI
04/09/13-Test results show complete resolution of tumor
04/17/13-Begin Just Herceptin
05/10/13-Right Breast Mastectomy Scheduled
5/15/13- Right Mastectomy with expander
8/2013- Implant surgery
9/2013- Implant revision surgery
1/2014- Implant Revision Surgery
5/2015- DX Stage IV MBC to Sternum ER-/PR-/HER2+
5/015- Begin 6 months Taxol/Herceptin/Pertjeta
11/2015- Last Chemo!
1/2016- Begin 12 rounds radiation
5/2016- NED!!!
ONGOING- Herceptin/Perjeta Infusion every three weeks indefinitely
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