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The metastatic breast cancer alliance

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12-15-2015, 08:14 PM	#1
Emy Senior Member Join Date: Mar 2012 Location: New York, new york Posts: 73	Re: The metastatic breast cancer alliance Andi I just joined Eileen __________________ Eileen's history her2+, er+,pr-, Pk13 mutation Feb 2017. Herceptin and perjeta ..still ned Oct 2015 dendritic cell vaccine university of Pennsylvania..6 weekly injections...boosters every 3 months July 2015 stopped weekly taxol (2.5 years of weekly taxol) still on herceptin perjeta every 3 weeks..still ned Jun 2014 liver ablation of 1 liver tumor..now ned Jun 28, 2013 ca15-3 24, cea 3.8... Pet scan showed 2 liver tumors with intensity of 2.7 and 2.5 (11/13 intensity was 8.0) Jan 2013 herceptin, perjeta every 3weeks, taxol weekly Jan 2013 MRI showed 3 liver tumors doubled in size ca-15 is 55 end of month 71, cea 7 Dec 2012. Pet scan showed single liver nodule, having MRI liver on dec18th...MRI liver 3tumors... on herceptin, tykerb , fulvestrant ca-15-3 is 42 Sept 2012 ca-15 went from 85 to 35, pet scan showed decrease May 2012 herceptin every 3 weeks, 1500 tykerb daily (6pills) and fulvestrant every 3 wks May 2012 herceptin stopped working ca-15 is 85 Sept 2011 started herceptin every 3 wks and femara daily..mets to liver. Bone and lymph nodes 2011 liver mets...all samples from 2001 and 2010 reviewed...her2 positive, fish 5.4. Er positive, prog neg. Stage 4 breast ca...never was lung cancer 2010 16 weeks of chemotherapy for lung cancer (incorrect). Carboplatin and vinalbine...was actually breast ca mets 2010 misdiagnosed with lung cancer ..2cm tumor removed..lower right lobe removed 2001-2006 tamoxifen 2001. Ductal ca. Rt mastectomy

03-01-2016, 06:37 PM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: The metastatic breast cancer alliance I hope more here will go to the site below and check it out. It seems the study is up and ready to run now. https://www.mbcproject.org/ __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

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