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Re: My leptomeningeal journey
Ann,
Thanks so much for this posting. I do believe that the information will help others recognize symptoms and raise awareness of the options that are out there for treatment. My sincere hope is that it helps YOU and you get to NED soon.
As another person who had a PCR, I have been told that my prognosis is good. I expect that you were told the same. In addition, I was told that being er-/pr- that if the cancer is going to come back, the risk is very high in the first two years from diagnosis and then drops pretty dramatically. Basically if the cancer doesn't recur in five years then chances are very low of it ever coming back.
What I'm wondering is what screening did you have initially to determine that you only had cancer in the breast and nodes? Additionally, what testing did you have after treatment to determine that you had a PCR?
Take care,
Brenda
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8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
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