Re: Ugh Brain Mets!
Hi All with experience of Gamma Knife.
My initial excellent response to Gamma Knife was shrinkage of the tumour that was around my thalamus from 2.8cm to 1.4cm but a few months later last two MRI scans have shown a marked change in shape and size so have just had Magnetic Resonance Spectroscopy in Bristol, UK. This is supposed to identify Active Cancer versus Necrosis so the experts can try and think of what to do next. I have now asked to be referred to Royal Marsden, London which may have other experts who can suggest something. I have recently returned from visiting Jacksonville, Florida where my lucky English daughter is working and she suggested I give the Mayo Clinic a call - do I dare go down that route that will be financially crippling.
Symptoms - double vision and strange sensory issues on right hand side of body (temperature and touch)have been the same since August so was really disappointed to discover the suspicious area has grown. Anyone have any suggestions - Hot Tub is great but I cannot live in a hot tub!
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