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Old 10-02-2015, 09:33 AM   #1
Juls
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Join Date: Mar 2014
Location: UK
Posts: 563
Re: How to find a doctor that will look out for your best interests?

Good question - In UK we have no say in who we see. In saying that I'm told I am in best place for treatment etc. Sometimes I'm not so sure! I am still finding out info over 2 years after diagnosis. Info that I think I should have been given at start.
Thank goodness for this site!
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Old 10-03-2015, 05:26 AM   #2
Becky
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Location: Stockton, NJ
Posts: 4,179
Re: How to find a doctor that will look out for your best interests?

I understand this completely as I changed once. What made it even worse as I did so within the same practice. It made (and still .makes) it alittle uncomfortable. I need a nerd doctor who is always reading and keeping up. The one I have now I am so confident in. Even though I am 11 years out, I know he is always updating a plan for me. I think if something happened, he would be ready with all the options for us to discuss and that his plan for me has changed over the years as New Her2 solutions have been developed. The other one gave me a 70% chance from the get go (my kids were school age then) and when Herceptin was available, he wouldn't give it to me but his partner did so I had my year of Herceptin alone without chemo as chemo and radiation were completed when I started (chemo by 4 months and rads by 2 months) . You never know what part of your treatment plan is the part that gets you to 11 years NED but maybe it was that Herceptin. I am here and happy to know I still have a doctor who I can work with should I recur or get a new cancer.

Bottom line, its a relationship and it has to work for you. Doctors are just people and you don't see eye to eye with everyone you meet.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"

Last edited by Becky; 10-03-2015 at 05:29 AM..
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Old 10-03-2015, 07:04 AM   #3
SpitFire
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Join Date: Dec 2014
Posts: 93
Re: How to find a doctor that will look out for your best interests?

Juls - I am glad that we can still choose our doctors for the time being. I don't want socialized health care, even though I have gotten more up-to-date information on this forum from people in socialized countries than from my "cutting edge" doctors.
Becky - I am glad you have found a real doctor. I would feel so much better if I knew someone was looking out for me. It is scary knowing that I am on my own, and am doing better than in the care of my incompetent doctors. That is so scary! I am not a doctor, but am way more informed than my doctors were.

I have had nothing but problems with my oncologist from the start. What gets me is how everyone just raves about him. He made mistake after mistake. He is sooo incompetent. Everyone defends him, because he is "nice." I have found out so much information on the internet and the other doctors still try and credit him! It is disgusting. I got no help from my oncologist and I got made fun of if I dared ask a question to my oncologist or "took advice from just a nurse," or looked at the internet. He is an obvious loser, but everyone just loves him!? He plays people. I had so much pressure to stay with him until I had enough that I would rather die than go back to him ever again. Then I finally stood up for myself and fired my oncologist and my beloved breast surgeon (he referred me) who promised me he would take care of me, but didn't, he tried to defended him instead. Now as I have found out certain things, I realize that my breast surgeon is scum too, he just hid it better. I don't trust doctors, but I need to pick out a breast surgeon as I am BIRADS 3 and need to be prepared if my status changes. I have been referred to another breast surgeon, but will not go to her. On the internet, my old breast surgeon looks top notch, but I know he is not working for me, so how do you find a good doctor? Are there red flags to look for? What are signs are there that someone is a good doctor? Remember when people used to respect doctors? At this point, I don't respect doctors.
__________________
8/2013 Diagnosed ER/PR Neg, Her2 Pos
FISH 6.86, Grade 2 (3,2,1), 10-15% Proliferation Rate 4.4cm
9/2013 Port Placement, Sentinal Node Biopsy 1/2 Nodes Positive having no extracapsular extension present
Stage IIb
9/2013 TCH
10/2013 TCHP
1/2014 End chemo!
2/2014 Lumpectomy Complete Response
2/2014 - 4/2014 Radiation
9/2014 Last Herceptin
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