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Old 08-07-2015, 10:04 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: A Special Note on Christine's Birthday, From Her Daughter

Thank you, Danielle, for looking in here and posting such a nice message.

Yes, I do remember Christine singing under her breath and sometimes louder than that at the cancer meetings! She knew how to keep the boogey man away.

I wish I could find a decent canole to eat in her honor!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 08-09-2015, 01:50 AM   #2
michka
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Location: Paris, France
Posts: 858
Re: A Special Note on Christine's Birthday, From Her Daughter

Dear Danielle, your parents are for ever in my heart. By building this forum they wanted to share hope and knowledge. What I always felt is that they were 2 beautiful persons.
The tone of this forum is very different and I really thank Steph, Rhonda, and Becky for taking care of it.
This forum saved my life because I was knowledgeable and helped me stay strong at difficult moments.
Thank you Christine. You are missed.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 08-09-2015, 04:21 AM   #3
sarah
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Location: france
Posts: 1,648
Re: A Special Note on Christine's Birthday, From Her Daughter

Hello Danielle,
What a lovely touching message, thank you. I celebrate the birth of your mother along with you and your family and friends.
You and Debra must be so proud of what Joe and Christine created and how many people around the world it has helped and continues to help. This site has definitely made my journey easier. Hardly a day goes by that I don't think of Joe and Christine and thank them for the unbelievable gift they have given us. You have extraordinary parents with such vision and generosity. If only the world had more people like them.
As an ex-New Yorker,( one of my favorite cities or places that I have ever lived in and I've lived in a few!), I can taste those wonderful cannolis! Too bad that so much of Little Italy has been taken over by Chinatown.
And songs, couldn't survive without music! my song through my second recurrence (thought it was curtains for me) during chemo was the Eagles "Get over it" and it helped me whenever I started to feel sorry for myself!
Thank you Danielle and thank you Stephanie, Rhonda and Becky for keeping this site alive. It continues to be so important to us all and you have all become my family.
"Oh Happy Day"
love and hugs
sarah
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