Herception

[DOlson]

I was diagnosed with stage 4 breast cancer mets to the lungs in 2007. I was HER2 positive, estrogen & progesterone negative. I had a double mastectomy and treatment with Taxol, Carboplatin, and Herceptin for 8 months. I continued to have Herceptin every 3 weeks since then. My lungs mets went away within 3 months after treatment by CT scans. I'm thinking about stopping my Herceptin every 3 weeks since I've been on it for 8 years now. I was wanting to know if there are any others out there that have been on Herceptin as long or longer than myself. I'm worried about long term side effects that are unknown from Herceptin. Thanks for help.
Donna

[Whonoze]

I'm in the same wonderful situation. Have been on Herceptin since January 2007. I think about going off but don't want to risk it. My heart has been holding out so far.

My onc leaves it to me, without any real input.