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Old 07-21-2015, 07:32 PM   #1
KathyT
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Join Date: Mar 2014
Location: Glendale, AZ
Posts: 210
Re: Did you have sentinel node or axilla dissection?

Think positive,
As far as I know they were not sentinal nodes, there is no mention of sentinal nodes in the report. Hope that helps��
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Kathy
38 years old!

January 17th 2014-mammo, ultrasound, biopsy
January 20th 2014- diagnosed, ER/PR+, Her2+++, Stage 2A
January 21st 2014-MRI, right breast only plus lymph nodes
January 23rd 2014- Pet scan-2 cm tumor, 3 lymph nodes
February 4th 2014-port insertion
February 12th 2014-first chemo treatment(TCHP x6 cycles)
May 28th 2014-LAST chemo treatment!!
July 10th 2014-double mastectomy
July 29th 2014-start radiation(30)
Sept. 11th 2014last radiation treatment!!!
November 12 2014-started Tamoxifen
January 20 2015-reconstruction begins, lat flap
February 4 2015-last Herceptin treatment!!
April 24, 2015- pet scan-NED!!
June 3 2015- exchange surgery, port removed!!
September 8 2015-hysterectomy/oophorectomy
September 15 2015-Revision of lat flap reconstruction
December 23 2015-nipple reconstruction
May 9th 2016-Mets to pituitary gland, liver and C7 vertebrae
May 10th-port put back in:(
May 17th- biopsy of mass on back
May 19th-started Herceptin/Perjeta
May 20th-5 treatments Cyberknife to pituitary gland tumor
June 9th-Started THP (will have 6 cycles)
August 17th-MRI of brain, significant reduction in tumor
😃, repeat MRI in 3 months. Received first Zometa
infusion.
June 24th 2019- Thoracic spine Mets, leptomeningeal Mets , 10 radiation treatments
Aug 1st- Ommaya Reservoir implanted
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Old 07-22-2015, 02:31 AM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Did you have sentinel node or axilla dissection?

Brenda, I had NAC. My onc and surgeon recommended NAC hoping it would spare me mastectomy and axillary dissection. Unfortunately it did not work well and there was no hesitation about having axillary dissection. As a result I have trouble raising my arm over my shoulder level, and I still have burning, stabbing episodes and pain in my arm more than 8 years later. The 2 first years it was so painful I took Neurontin. It is better now but I still suffer from my arm. It also made my breast reconstruction very complicated. Maybe I had a bad surgeon but if they use SNB now, it is to try to avoid extra mutilation. All this to say that if you have PCR and SNB is good, why go for axillary dissection? And I am lucky! Some women have horrible lymphedema.
Having done axillary dissection did not save me from turning stageIV 4,5 years after dx. There are a lot of discussions going on between surgeons about the real use of axillary dissection even for the bad cases but there is no clear conclusion.
I am not a doctor but my opinion is that you were right not to go for it since you had PCR and clear SNB.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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