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Old 04-21-2015, 02:47 PM   #1
Rolepaul
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Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 391
Re: Cancer in Spinal Fluid - given 6 months

dchips1 is one of the winners. She keeps getting the wrong of the stick and just goes on fighting. All I can say is she does this without having the support that many others do. Keep on fighting and only give up when there is no more breath left in you. And then fight for ten more minutes.
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Old 04-22-2015, 04:44 PM   #2
Saygoon
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Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
Re: Cancer in Spinal Fluid - given 6 months

Again, thanks everyone for the encouragement. Right now I am in the process of getting an appt with M.D. Anderson. Hope they can see me ASAP. Looking forward to exploring what kinds of treatments they can offer.
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Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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