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Old 04-20-2015, 07:57 AM   #1
LaDonna28
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Posts: 78
Re: Herception

Marion,
I have also heard that although the majority of time your heart 'goes back to normal', there are some rare instances where that is not the case.
Maybe you can get them to recheck it again.
I have until August before I am done with my year of Herceptin. I have to REMIND the Dr. every 3 months about the echo. Currently waiting for my last results.
My thoughts and prayers are with you!
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Steriactic biopsy July 2011 for microcalicificarions - negative
Mammogram 2012, 2013 no change
Mammogram July 8, 2014, more microcalcifications and mass (10mm per radiologist)
Diagnostic Mammogram July 10, 2014
Steriactic Biopsy July 15, 2014
July 21 given diagnosis DCIS and IDC upper, Outer quadrant of right breast
ER Pos >95%. PR Pos 90%, HER-2-neu positive (score +3) Grade 3
Breast surgeon on July 29, 2014 says 2 cm
MRI states only mild to moderate bilateral physiologic background parenchymal enhancement with uptake on intermammary nodes
BRCA tests all negative :)
August 8 port placement. Lung partially collapsed. On oxygen until further notice
August 9, '14 started TCPH therapy with nuelasta shots. 6 cycles @ 3 weeks
5th treatment T and C dosages lowered due to bad neuropathy
6th and last TCPH changed to PH only for Dec 1st
Lumpectomy and node biopsy Dec 2
100% complete response from TCPH neoadjuvent therapy: tumor completely gone-dead cells only. Node completely free of ANY cells. Staged at 0! Margins clear from 4mm-10mm from dead cells.
2 week period following surgery went in for draining of Hematoma that filled surgery void area in breast 3 times
Continued with Herceptin only December 22, 2014 @ 3 weeks until ???
Started radiation Jan. 7, 2015 plan is for 16-20 rads
january 25th 2015 last radiation completed. Stopped at 16 due to Seroma (void in breast is filled with fluid)
January 30 Tamoxifan started
Still on oxygen, tamoxifen side effects kicking my butt. Seeing a gastro dr. due to a lot of stomach issues.
July 2015 - 3D mammogram nervous as all hell - but came back clean!!!! YEAAH
March 2016 - only using oxygen at night! Stomach issues better and trying to wean off the heartburn meds. Am hoping to get reconstructive done Jan 2017.
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Old 04-20-2015, 08:57 AM   #2
Becky
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Location: Stockton, NJ
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Re: Herception

What kind of chemo did you receive. Some chemo drugs affect the heart and that damage may not rebound. What were you echo or mugas starting out? Also, this may just "be you" and may have occurred anyway even if you didn't ever get cancer. Were you advised to see a cardiologist? If not, you should.


Hugs to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 04-20-2015, 09:18 AM   #3
Rolepaul
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Location: Boulder Colorado as of January 2013
Posts: 391
Re: Herception

Less than 5% of the time there are heart issues of this type. If you are heavy, have prior heart issues, have high blood pressure, or high cholesterol, then there is a chance that this might occur. It is very unusual, but not unheard of. Do you feel more tired walking than previously? Are you dizzy when you stand up? Is your blood pressure higher than previously? High blood pressure is found to be a potential factor for Herceptin to cause Muga decline. I would discuss this with a specialist.
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