It sounds like you are saying that you have leptomeningeal metastases. (You did not specify what the MRI was of)
There are several here who have done well on intrathecal herceptin ie, herceptin given directly into the cerebrospinal fluid.
Rolepaul is very knowledgeable about the trials going on ---I hope he spots this soon as his info is the most complete and up to date I would think.
His wife was also given only months to live and has done well for years now.
Try to private message him if he does not respond soon.
All the best,
Lani
PS while you are waiting, try this 10 pg long thread:
http://her2support.org/vbulletin/sho...eal+metastasis
Hybrid Mode
