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Old 12-17-2014, 10:38 AM   #1
Rolepaul
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Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 391
Re: early Christmas present--10 yr overall & bc specific survival results just publis

We are celebrating Christmas 2014 after being told that Nina had 3 to 6 months to live at Christmas 2011. She had Intrathecal Herceptin starting January 2012, with IV Herceptin in February 2012. We switched to TDM-1 for the systemic in August 2014. October 2014 MRI scans showed disease in full remission. Confirmed this week with followup MRI and CT scans. There is hope out there for even the worst situations. It takes a site like this to help people out. And then it takes the patient and support group to get the correct treatment done. Fight to get what you need and deserve.
I hate to lose (Wrath of Khan). Never give up (The untouchables).
Paul the Herceptive Positive Equalizer
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Old 12-17-2014, 11:02 AM   #2
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: early Christmas present--10 yr overall & bc specific survival results just publis

We need you as an Equalizer Paul! Wonderful news on Nina! Your tireless efforts are beyond laudable.

I have no doubt Herceptin has given me the life I would have missed! My Onc was celebrating with me last month my near 10 year survival---he grinned, shook his head, and said, "You had one nasty cancer."

For me: Herceptin 1
Nasty Cancer 0
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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