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Calling all stage iv sisters

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11-09-2014, 10:36 PM	#1
yanyan Senior Member Join Date: Apr 2011 Posts: 403	Re: Calling all stage iv sisters Currently suffering from radiation but very happy to be around!!! __________________ 1/11 age 36 DX ER/PR-, Her2 + TCH6, Herceptin BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes 9/11 Radiation 3/12 Local recurrence to skin stage IV Whole body scan CLEAR 4/12 Tykerb & Xeolda Skin mets slowly regressing 8/12 PET & Brain CT Clear 5/13 Skin mets progressing 6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes 6/13 kadcyla 10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence 11/13 to 02/14 tykerb & herceptin 02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose 05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo 05/14 navelbine perjeta herceptin 07/14 skin mets progressing red rash worse 08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks 09/01/14 resection- clear margins 3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer Radiation 11/2014 with xeloda then weekly cisplatin 11/14 brain MRI clean 12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week 12/14 t current Herceptin and perjeta only 02/15 rash on upper back right side skin mets radiation planned 02/15 staring electron radiation 35 Stopped at 30 due to severe skin burn, resumed 10 days later 05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska. 05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line 07/15 multiple skin and lung recurrence begin halaven 11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious 11/15 heading to China for immune therapy

11-15-2014, 11:48 AM	#2
Kim in CA Senior Member Join Date: Sep 2001 Location: California's Gold Country Posts: 404	Re: Calling all stage iv sisters Just checking in since it's been awhile. I've recently updated my signature, and as you can see, I'm still hangin in! 13 years stage IV, who would have ever "thunk" it! __________________ Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin. 5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation. 9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara . 11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED! 7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal! June -Dec 2004 UW Vaccine Trial. 7/2005 MRI single 11mm brain met 8/2005 Gamma Knife. Brain MRI @3 months NED! 2006-2011 brain/body still NED 8/04/11 Taking Herceptin break, will monitor with tumor markers. 6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month. 7/23/12 CA15-3 now 49.3 Her2 Serum 26.8 8/6/12 Back on Herceptin CA15-3 now 76 Her2 Serum now 49 11/7/12 Add weekly Taxotere for 4 cycles 2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta. November 2014 Continuing on Herceptin, Perjeta, and Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully! Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara Jan 2016 Begin Kadcyla March 2016 PET scan shows tumor now barely visible, still NED everywhere else. 2016/2017 continue Kadcyla November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...

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