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Off with her breast!

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08-19-2014, 07:42 PM	#1
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Off with her breast! Wishing you a swift recovery! __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.

08-20-2014, 07:31 AM	#2
MaineRottweilers Senior Member Join Date: May 2013 Posts: 570	Re: Off with her breast! I'm home! Super easy time with anesthesia this time. Ready to face the world, the new flat and fabulous me. I feel like this is closure in my cancer journey. Love you all, thank you for your support and wisdom. Now I can say I'm a survivor. ....and feel good about imparting my "wisdom" and experience to newcomers. I've DONE IT! __________________ Tracy Arcari ___________________________________________ 11/12 BSE ignored the lump for SIX months. 5/1/13 IDC ER/PR- HER2/neu+++ 5/14/13 Mastectomy and SN biopsy 5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue. 5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline. 6/4/13 Installed my little purple power port. 6/14/13 Chemo started TCH 6/14/13 Informed of suspicious ares on scans scheduled PET. 7/1/13 PET Scan NED! 9/27/13 FINAL CHEMO taken! ----well, maybe not. 10/15/13 Three little tattoos. 10/24/13 Radiation begins and fourth tattoo placed. 11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter. 1/2/14 Happy New Year, you have a Goiter? Muga down to 59%. 1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER! 5/2/14 Herceptin completed! New kitten! 8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR. 2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision. 4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready. 5/4/15 Brain MRI clear (big sigh of relief) 7/30/15 Back Pain 8/31/15 Radiograph: compression fracture L2 9/10/15 Bone Scan positive 9/21/15 CT scan conclusive for tumor 10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing. 10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary. ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells. 10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine. 10/14/15 Radiation consult back to the cooker. 10/20/15 MUGA 50% down from 54% after a year off Herceptin (???) 10/21/15 Kyphoplasty L2 10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere 10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!! 10//29/15 Xgeva 10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty. 10/30/15 CA27-29 63 U/mol (<38 U/mol) 11/3/15 First Trip to see Dr. E. Mayer at DFCI 11/4/15 Surgical consult to re-install my little purple power port. 11/9/15 Radiation treatment one of five. 11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today. Yes, we really are going down this road again. 12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets. 12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15) 12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B. 12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working. 1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva. 3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????) 3/31/16 Discontinue Taxol start Arimidex, still getting H&P. 6/2/16 Discontinue Arimidex and start Exemestane. 6/18/16 PET is NEAD!! 7/1/16 Discontinue Exemestane and restart Armidex (SEs) 8/29/16 CT/Bone Scan Stable (still uptake at T10-11) 10/3/16 BSO pathology negative 10/10/16 MRI: Brain clear! 10/14/16 Switched care to Harold Alfond Center for Cancer Care 11/24/16 Xgeva, New MO preference to Zometa 12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET 1/12/17 PET shows NEAD celebrate with a new puppy! 3/29/17 CT & BS = NEAD 7/31/17 Aetna denies access to H&P <gearing up for a fight> 8/4/17 CT& BS= STABLE 8/9/17 No treatment, Aetna still denying H&P 8/14/17 Aetna appeal approved H&P through February 2018! 2/5/18 CT & BS = STABLE //

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