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Re: New Here & Need Words of Wisdom
Pink Flamingo let me just say this , I did AC and by my 3rd round there was a small decrease but not what they had hoped for. I to was sad and discouraged and worse wondered if I made the right decision by not choosing to use perjeta . Well after all that been said my doctor said that once I start the taxol and herceptin then we should see something more it took a few treatments and we saw small changes but again not what we had hoped for then after all was said , done and complete by that time we could no longer physically feel the mass ( I had tumor and a sheet like mass ) This was great news! When we did the final CT scan it showed that the tumor did not shrink at all ( the sheet was gone) ,again very sad and discouraged it at same time Doc did say maybe it was just necrosis we where seen on ct . So did bmx and got some great news tumor did shrink tremendously from 5cm x6cm to 0.8 mm. What we saw on the Ct was Necrosis ( dead tissue) left behind from the chemo and no positive lymph nodes
officially declared cancer free June 15th 2014. Sometimes of course it still hard for me to believe that I no longer have cancer.
Many ladies on this board have stories of there own where they to where discouraged and yet found all positive.
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]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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