Navelbine & Herceptin Not Working - HER2 Support Group Forums

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Navelbine & Herceptin Not Working

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06-14-2014, 02:06 PM	#1
DizzyDo Senior Member Join Date: Feb 2014 Location: Washington State Posts: 49	Re: Navelbine & Herceptin Not Working Sending prayers your way to find the next plan. You are so strong! __________________ 2009: dcis rt side, mastectomy, no chem or rads 2009: rt recon implant. Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++ Feb 2014: herceptin, perjeta, taxol July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again. Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm) Feb 2015: Linac Stereotactic Radiation for brain mets June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease October 2015: New brain Met, zapped by Stereotactic rads, watching another spot Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks

06-14-2014, 04:13 PM	#2
Catherine Senior Member Join Date: Dec 2006 Location: Oregon Posts: 715	Re: Navelbine & Herceptin Not Working Hi Karen, Sending all the love and positive vibes I can. We are all here with you as you wait for the scan news. Prayers are coming your way! __________________ Catherine Found my own lump in the shower April 2006 at the age of 58 Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm Chemo first: AC/Taxol over 16 weeks Bilateral mastectomy Sep 06 33 rads after the surgery 1 year of Herceptin completed Dec 07 15 years and no recurrence as of April 2021

06-14-2014, 09:01 PM	#3
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267 Images: 4	Re: Navelbine & Herceptin Not Working Sending positive and healing thoughts and prayers. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!

06-14-2014, 09:41 PM	#4
caya Senior Member Join Date: Jan 2007 Location: Thornhill, Ontario Canada Posts: 2,320	Re: Navelbine & Herceptin Not Working Prayers for you Karen from the Great White North. all the best caya __________________ ER90%+/PR 50%+/HER 2+ 1.7 cm and 1.0 cm. Stage 1, grade 2, Node Negative (16 nodes tested) MRM Dec.18/06 3 x FEC, 3 x Taxotere Herceptin - every 3 weeks for a year, finished May 8/08 Tamoxifen - 2 1/2 years Femara - Jan. 1, 2010 - July 18, 2012 BRCA1/BRCA2 Negative Dignosed 10/16/06, age 48 , premenopausal Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so. Reclast infusion January 2012 Oopherectomy October 2013 15 Years NED!!

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