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Old 06-03-2014, 08:49 AM   #1
annettchen
Senior Member
 
Join Date: Mar 2014
Posts: 95
Re: news from ASCO-- some joyous, some a downer--may set things back a bit

I have read somewhere that only 4% of the research money go into stage iv to begin with. I hope that's not true, because for me - being 43, stage iv off the get go, with a 5 year old daughter, that is EXTREMELY scary. If we can't find a cure in my lifetime, then my "selfish self" needs the list of treatments that may slow this thing down to be as long as ever possible.

I understand, though, that stage iv BC (HER2 or any other) is not the "pink success story" that easily raises money, and is good for "sunshine" publicity a la "you'll be fine". It's painful and arduous, and a lot of time and work spent for sometimes very little gain or progress. I know it's ugly. Only: that does not help me at all, I still want to live?
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Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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