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Re: Diagnosed 1999, no recurrence. Chronic pain biggest problem.
Have you seen a rheumatogist about the joints? Maybe it is something different or maybe it is fibromyalgia. My girlfriend got cancer about 3 yrs before me. Not Her2 but got 4 rounds of AC and 4 rounds of taxol. She had lots of residual pain and was diagnosed later with fibromyalgia and is on Lyrica and doing well. I am not saying that's whats wrong with you but certainly there has to be something that can help you versus narcotics. Seek out opinions with a rheumatogist who specializes in joints. You didn't mention if you are on an AI (Arimdex, Aromosin or Femara). These cause joint issues too.
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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