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Old 02-04-2014, 07:44 PM   #1
Kkmom
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Location: 'Burbs of Atlanta, GA
Posts: 172
Re: Sleep and cancer

I have been using effexor xr for the past 6 years. It was prescribed to me by my GYN after going to him for severe insomia and hot flashes. It was a godsend. Prior to using effexor, I would wake up every night at 3:30 on the dot and not go back to sleep - it was a vicious cycle, which made it hard to function. The effexor changed everything.
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[FONT=Tahoma]Dx 12/14/2012, IDC, 2cm, Stage II, Grade 2, 4/5 nodes, ER+/PR+, HER2+[SIZE=2][COLOR=Blue]
Surgery 12/28/2012 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)
Chemotherapy 02/06/2013
Herceptin, Carboplatin, Taxotere Started 6 rounds on 02/06/2013 Herceptin
Finished chemo - May 22, 2013
Radiation Therapy 06/12/2013 - 36X External
TM Marker - 13 October, 2013
TM Marker - 15 November, 2013
Annual Mammagram - 3D - Both Breast - CLEAR!!!
Colonscopy - 1st-Clear - November 18, 2013
CT Scan-Results-Clear - November 27, 2013
BC Diagnosis-1 Year - December 14, 2013
TM - holding steady at 15 - December 24, 2014
TM - 24.2 - January 12
Herceptin Treatment - Last One-February 4, 2014!!!
TM - 3.7 - February 4, 2014
MRI & CT - February 21, 2014 - All Clear
NED - and my doctor said - "well, it looks like you are NED - your MRI and CT are clear - Febuary 25, 2014
TM - 18.2 - February 21, 2014
Port Removed - Scheduled for Wed, March 19, 2014
Port Removed - Yeah!!! I feel lighter already!!!
TM - 15.3 - March 25, 2014
Diagnostic 3D Mammogram - Rt Breast - All Clear!!! - Tuesday, May 13, 2014
TM-15.5 - June 25, 2014
Diagnostic 3D Mammogram - Nov. 2014 All Clear!!!
Diagnostic 3D Mammogram-Rt Only-May,2015-All Clear!!!
Diagnostic 3D Mammo-Annual-Nov 2015-Right Clear!!! - Left Breast-found 5 mm CYST. Aspirated - all clear!!
TM - Nov 2015 - 18.2
NED-December, 2015 - 3 Years NED!!!
TM-Feb 2016 - 13.7
TM-June 2016 - 13.3
TM-Oct 2016-10.0
Annual 3D Mammo-Nov, 2016-All Clear!!!

Annual Mammogram - November 2017 - ALL CLEAR. i AM 5 (YES) YEARS OUT!!!

NED - 10 Years Out!! - December, 2022
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Old 02-05-2014, 09:18 AM   #2
Bellaokc
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Location: Oklahoma
Posts: 51
Re: Sleep and cancer

Kkmom,
Can you tell me the dosage of your Effexor? I am on 37.5 mg and am thinking maybe it needs to be raised so I can drop the other meds.

Aussie Girl...let us know how the Mirtazapine wafers work.

thanks!
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Norma,

June 7, 2013: Age 43, mother of 2, had just celebrated 16th wedding anniversary June 6th
Dx Invasive Ductal Carcinoma:
ER-, PR-, HER2+++,
Stage IIb, 5 cm. tumor, grade 3
Benign lymph nodes.
June 26, 2013: Begin 4 Rounds of AC
Sept 19, 2013: Begin 12 weekly treatments of Taxol/Herceptin
Oct 22, 2013: Skipped a treatment because of a trip to the ER. Turned out to be a blood clot in the inferior vena cava….Started Coumadin (aka Warfarin)
Dec 12, 2013: Last treatment of TH
Dec 20, 2013: CAT scan and nuclear bone scans show NED. Yay! Chemo worked!
Jan 24, 2014: Bilateral mx w/expanders inserted; 10 Lymph Nodes removed on left side;Pathology report shows no trace of tumor was left after the chemo. More proof that the chemo worked!
Jan 30, 2014: Emergency surgery due to hematoma on the right side. Had a filter inserted to deal with blood clot that had developed in October.
Feb 2014: Begin Herceptin only treatments
Aug 29, 2014 Expanders OUT and implants IN
Sept 4, 2014 Last Herceptin treatment YAY!!
Oct 8, 2014 Port Removed
Dec 5, 2014 Nipple Reconstruction

Current Meds: Daily - 150 mg Effexor; 50 mg Tramadol for aches and pains caused by treatments
Occasional - 30mg Temazepam (Restoril) for insomnia ; 300mg Neurontin for nerve pain in left arm; 1 mg Lorazepam (Ativan) for anxiety;
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Old 02-06-2014, 05:03 PM   #3
Andrea Barnett Budin
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Re: Sleep and cancer

For me the Effexor had no effect on my constant clammy wetness, feeling that I was trapped inside something. And it made me feel weird.

So, slowly, slowly, after begging to be taken off, I weaned off.

Evening Primrose helped during the day. Ativan helped during the night. Actually Ativan was excellent for hot flashes but can't take it by day.

My fav onc since 1995 told me way back, when I resisted taking pills as I never even took aspirin -- YOU SHOULDN'T HAVE TO SUFFER. THAT'S WHY WE HAVE THESE PILLS. TO HELP YOU. AT THE FIRST SIGN OF PAIN, NAUSEA, WHATEVER -- TAKE A PILL. He's basically very conservative, though aggressive when necessary, always reasoned and caring. I offer that advice to all of you.

I find watching a movie, the more boring the better, I start to fall asleep.

I do add Theanine (natural supplement, calmative) to help stop the non-stop thoughts pounding inside my skull. And melatonin.

I would be walking the hallways in my house till 5 AM if not for help. And that is not good, for my body (it needs to regenerate and rejuvenate). I read a study on nurses who worked the night shift. Their T cells were way lower than the other nurses'. Their immune system was compromised. That's the last thing any of us wants, right?!
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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