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Re: Hi number of positive nodes
Perjeta just got approved by the FDA...has your doctor mentioned this?..I know your wife already had her surgery, but its worth asking.
I also enrolled in the vaccine trial at Mayo as you can see from my signature. I tolerated the vaccine very well. Many of the the women on the board had the vaccine also. She still has radiation ahead of her...but something you might want to research on her behalf.
The number of nodes is really scary, but many of the women that had chemo prior to surgery, probably had a bunch of positive nodes but Herceptin and the chemo eliminated the cancer in the nodes. I also had many areas of extracapsular spread into the muscle area of my arm...so I was a mess.
My onc at the inception of my treatment said I had less than a 10% chance of recurrence if I tolerated all the treatments. She has a large practice at Rush in Chicago and has been at the forefront of the early Herceptin trials. She treats alot of Her2 patients. I have to admit I did not believe how positive she was, but I just had my check up last week and I told her...I am starting to believe I will be ok. She told me it is "A New Day" for treatment of Her2. She just returned from San Antonio Breast Cancer Conference. She said the positive news about the current Her2 treatments and new ones in the pipeline are incredible.
It's a crappy disease to get...but we are in exciting times from a scientific standpoint.
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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