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Re: New mets for MJ :(
1 1/2 yrs ago I had ascites and when started abraxane had quick results from it. I drank LOTS of iced water every day, rinsed with Biotene mouthwash and used the water, salt and baking soda for mouth sores (it really works well but does taste awful). She could try eating soft foods including yogurt, cottage cheese, bread not toast. I puréed or cooked vegetables, soups etc. I had a childhood craving come back for cottage cheese and peaches that has happened twice now with treatment and disappears when done. Oh and nothing too hot to burn the mouth. My ascites left and I haven't had a problem since. Knock on wood. The abraxane is hard but I was able to tolerate it for over a year. She will fall into a routine for control of side effects and it becomes tolerable. You guys can do this. Good luck.
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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