How can they know this?

[KirisMum]

I am so heartened and encouraged to read these responses. Jacqueline, that is a beautiful outlook. Thank you so much. Thank you all. I'm humbled and grateful that in the midst of all your own trials you ladies are so generous in reaching out to talk me off the ledge. XOXO

[Jackie07]

When it comes to statistics/prognosis, everyone needs to read Steven Jay Gould who had survived 20 years more than the predicted average/median years given by his doctor. http://people.umass.edu/biep540w/pdf...ay%20Gould.pdf

[jellybean]

I am glad your daughter had such a great response to treatment. Of course, her oncologist can't know how long she will live. All the doctor can do is give his best estimate, based on the median of how patients like your daughter have done in the past (without the new medications that are coming along). My oncologist was very reluctant to give me any estimate, when I was diagnosed with widespread metastatic disease (lots of bones, liver, and lymph nodes). I pressed and pressed, wanting to be able to plan my approach to work, finally sending her an email with multiple choice questions. At the time, she said 5 years, outside chance 5 to ten. Well, next month will be 5 years since I received her email, and I am still (knock wood!!) doing great. Yesterday, for example, I rode my bike 40 hilly miles and then swam a few laps. It has been almost 6.5 years since my original diagnosis (with was stage 4 from the beginning). In November, I will hike to the bottom of the Grand Canyon. So, don't lose hope! Her doctor probably wanted your daughter to have a sense of the possible time frame, so she can seize the time available to do what she has always wanted to do.

JB