update I hate to give (with a little more positive spin) - HER2 Support Group Forums

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update I hate to give (with a little more positive spin)

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04-27-2013, 11:38 PM	#1
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: update I hate to give (with a little more positive spin) Chrisy has fought the good fight. She will remain in our hearts. May she rest in peace... __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 04-28-2013 at 11:36 PM..

04-28-2013, 03:19 AM	#2
dawny Senior Member Join Date: Oct 2011 Location: Geelong, Australia Posts: 250	Re: update I hate to give (with a little more positive spin) Thank you for letting us know, steph. Chrisy will be sorely missed here, she was full of compassion and humor, a shining light on the boards Dawn xx __________________ Dx May 27 2011, age 43 Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck HER2+ ER/PR- Abraxane weekly - 16 weeks Herceptin every third week September 26 2011 N.E.D! Herceptin ongoing 8th Dec 2011 Brain MRI - clear 20th Dec 2011 bone/cat scan clear still NED April 2012 scans show axillary node lump - ? what to do... June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial July 2013 stable Oct 2013 progression off TDM-1 (Kadcycla) Nov 2013 radiation to lymph nodes in sternum Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work! April 2014 NED. On Herceptin only August 2014 NED. On Herceptin only March 2015. NED. On Herceptin only September 2015 NED on Herceptin only March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative. Can’t give self injections on to tablets (Xarelto) for blood clots. 2017 NED - On Herceptin only 2018 NED - On Herceptin only 2019 NED - On Herceptin only 2020 NED - On Herceptin only 2021 NED - On Herceptin only

04-28-2013, 03:47 AM	#3
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: update I hate to give (with a little more positive spin) No! Not our Chris! She means so much for us. Steph, my thoughts and heart go out to you and your family. Love. Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms

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