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Old 04-07-2013, 05:40 PM   #1
europa
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Re: Why i take supplements

Anyone know how to find a good integrative medical professional with oncology experience? I feel like this is a field that is a bit mysterious.
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DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
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8 YEARS NED
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Old 04-28-2013, 04:53 PM   #2
kvogler
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Re: Why i take supplements

I heard a news story the other day saying that Gingko Bilboa has been found to cause tumors in rats and that it may be pulled off the shelves. I don't take it so I didn't give it more thought. Of course, everything seems to cause cancer one day and not the next. I'm just enjoying my coffee today because a report came out stating it prevents a recurrence. But give it a week, and it will be causing something.
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Old 05-05-2013, 04:39 PM   #3
Andrea Barnett Budin
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Re: Why i take supplements

Please, if you haven't already -- check out the GARLIC, WINE AND CHOCOLATE thread.

More about supplements and foodstuffs that help inflammation, promote tumor cell death (apoptosis) -- and energy medicine!

I am having grand success w/a simple 2 minute ibs technique for -- diarrhea -- if anyone is interested in this.

Plus energy medicine for boosting your energy. Insomnia. And more. Takes a few minutes to do and works almost immediately.

I am amazed. And delighted. Life-changing...

Any interest???

LOVE,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-14-2013, 06:13 PM   #4
Andrea Barnett Budin
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Re: Why i take supplements

It occurred to me yesterday, midst OUTLIVING CANCER book (Dr. Robert Nagourney) -- MUST READ! -- that my supplements are in fact my MAINTENANCE THERAPY.

They aided me in not succumbing from all that nasty but effective Taxotere -- gotta just bite the bullet and go for it. My supplements helped keep my ejection fraction up (Arginine 500 immediate and 500 sustained release) actually works. Opens the blood vessels. Keeps the heart strong to withstand it all.

The stuff I still take for energy, just always low on the stuff, truly HELPS BIG TIME.

And though I am nearly 5 yrs off Vit H (Herceptin as I always refer to it, after 10 yrs on it) -- I would not even consider for a second stopping my MAINTENANCE THERAPY aka supplement regimen.

It's a pain in the butt. 2 x a day. Every darn day. Swallowing one at a time, stationed in front of the TV, focusing on whatever rather than the swallowing process -- is a true chore. But I am dedicated. I see the miraculous results. I feel the results. I KNOW I am doing all I can to remain healthy and well, stable, energized, no pains (co enz q10, alpha lipoic acid and carinitine), also Wobenzym 1 pill 1/2 before meals. D. All the Bs. C. Calcium. Omega 3 (RB is surely proud of that).

I go in to detail way above in this thread, for those who are interested in dabbling. I order on line @ Vitacost.com cause their quality is good and their prices discounted. Order $50, easy, and you get free shipping.

HERE'S TO YOU ALL! HEALTH AND WELLNESS!!!

Much love,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 02-06-2014, 02:48 PM   #5
Andrea Barnett Budin
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Re: Why i take supplements

"Fate is a future you didn't try hard enough to change."


- Joe Konrath


HERE'S MY UPDATED SUPPLEMENT LIST as of JANUARY 2014, as some have requested:

ALWAYS BUY CAPSULES VS TABLETS. Much easier to swallow. I order from Vitacost.com Excellent product quality, variety to choose from, easy to navigate website, always at discount prices, delivers quickly.



ALPHA LIPOIC ACID 300 AM/PM -- detoxifies liver, anti-oxidant, neurtralizes free radicals, protects cells from damage, can cross the brain barrier, gives energy, RELIEVES MUSCLE AND JOINT PAIN
B-5 -- 500 AM (Pantothenic acid)
B-12 concentrated METHYL CARBALAMIN 1 mg (I take 2
-- ENERGY BOOSTER! ALSO -- Goes to cerebro-spinal fluid to be used by central nervous system. Donates to MYELIN SHEATH that insulates certain nerve fibers!)
CALCIUM 1,000 -- easy to swallow gel capsule -- increases bone density
CARNITINE 500 AM/PM EMPTY STOMACH -- assists in gastro absorption, energizes, lowers triglycerides, RELIEVES MUSCLE AND JOINT PAIN, assists in weight loss
C-1,000 w/bioflavonoids 1,000 -- enhances immune system, reduces recurrence of cancer
CO-ENZYME Q-10 -- 150 AM/PM -- HELPS RELIEVE MUSCLE AND JOINT PAIN, energizes, good for heart, gums and multiple other reasons!
CHROMIUM PICCOINATE -- 400 mcg ( AM EMPTY STOMACH) -- maintains sugar levels, energizes
D-3 -- 50,000 a week. I take 10,000 over 5 days a week. For healthy bones, blocks breast cancer cell growth, meets your body's organs increasing need for D as we age. BE KIND TO YOUR ORGANS. THEY DEPEND ON YOU.
DL-Phenalalanine 500 AM empty stomach -- mood enhancer
DIM-Plus (Diindolylmethane) 100 AM PM
Evening Primrose Oil 1,300 AM/PM -- relieves hot flashing, down-regulates HER2 by binding to extra cellular HER@ receptor, down regulates internal proliferation (I'VE STOPPED THIS AS OF 12/13 AS MY 25 YRS OF HOT FLASHING ALL DAY LONG HAVE CEASED. A CONCOCTION MY HOLISTIC CHIROPRACTOR GAVE ME HAD SOME PORCINE GLANDULAR CONCENTRATE IN IT. WITHIN 2 MNTHS I WAS HOTNESS-FREE, BUT MY TSH FLATLINED! SO I STOPPED THAT AND NOW ON RARE OCCASION TAKE 500 OF EVENING PRIMROSE OIL WHEN THAT 'IS IT HOT IN HERE OR IS IT JUST ME' FEELING COMES OVER ME...)
DR. BEST FOLATE W/QUATREFOLIC 400 mcg AM on empty stomach -- red cell booster,
heart healthy
E 400 AM/PM (heart healthy, helps relieve hot flashes, immune booster, inhibits metastases, decreases tumor burden)
ECHINACEA W/GOLDENSEAL AM/PM for 1 week then alternate with ASTRAGALUS 1,000 AM/PM
FLAXSEED OIL (ORGANIC) 1,000 AM -- anti-cancer, heart healthy, detoxifies, improves brain functions, helps painful, severely dry eyes (since Taxotere '98-'99)
Gingko Biloba Extract 60 AM/PM -- mental alertness (I'S IN A HOLDING PATTERN ON THIS CAUSE OF ALL THE NOISE AND FUSS ON THE NEWS. NOT COMPLETELY SOLD, SO DIDN'T TOSS MY SUPPLY JUST YET.)
GLUTAMINE 500 AM EMPTY STOMACH -- assists in gastro absorption, energizes
LYSINE 500 AM EMPTY STOMACH -- assists in gastro absorption, energizes, lowers triglycerides
RESVERATROL 250 W/Grapeseed Extract 150 AM AND Green Tea Extract -- anti-oxidant, can cross blood-brain barrier and protect brain and spinal nerves against free radical damage, enhances anti-tumor effect, protects liver, strengthen connective tissue, including heart system, supports immune system and slows aging, anti-cancer, HER2 and tumor blocker
NAC (N-Acetyle Cysteine) 600 AM -- supports healthy liver function, rids body of toxins
NADH -5Co Engzyme 1 (AM/PM) 1/2 hr before eating -- relieves chronic fatigue, boosts mental acuity big time
OMEGA 3 -- 2,126 AM/PM -- suppresses tumors, inhibits their growth, may slow or prevent recurrence of cancer, improves blood glucose, good for muscle/joint pain, anti-inflammatory, down regulates HER2 receptor
Phyto Formula -- 1 scoop w/OJ in AM-- promotes energy BIG TIME, reduces chronic fatigue, boosts immune system and increases mental clarity + 1 banana a day!
Potassium Albion 99 AM/PM -- bone healthy, energizes, healthy heart, prevents stroke
RM-10 IMMUNE SYSTEM PROTEN-ZYME MUSHROOM BLEND w/200 SELENIUM -- AM on empty stomach (regulates the immune system, anti-oxidant, detoxifier, reduces recurrence of bc)
ZINC 30 AManti-cancer
TYROSINE 500 AM EMPTY STOMACH -- boosts energy, helps focus and recover from night of poor sleep

FOR MY IBS ISSUES:
GARDEN OF LIFE PRIMAL DEFENSE PROBIOTIC

WOBENZYM-N -- 2 about 1/2 hr before eating (AM/PM) -- THIS IS ALSO AN ANTI-INFLAMMATORY AND AN IMMUNE BOOSTER

TO HELP SLEEP -- ATIVAN (anti-anxiety, helps thoughts bashing into my skull from the inside), AMBIEN (sleeping pill which also depletes the body of natural melatonin!), MELATONIN, THEANINE (natural calmative)

WE ALL NEED TO SLEEP, TO ALLOW OUR BODY TO HEAL AND REPAIR! And to be able to function well the next day!

I truly do hope this helps you my Sisters...
LOVE AND LIGHT ALWAYS,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...

Last edited by Andrea Barnett Budin; 02-07-2014 at 10:25 AM..
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Old 02-06-2014, 02:50 PM   #6
Andrea Barnett Budin
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Re: Why i take supplements

I painstakingly highlighted each supplement in yellow. I colored various sections for cohesion.

It seems there's a new format for posting and colors do not transfer anymore!

That is so annoying, I have no words. Our Denise would also be irate, as we both loved to speak in colors...

Sorry.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 02-07-2014, 10:29 AM   #7
Andrea Barnett Budin
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Re: Why i take supplements

I would just add -- be careful to read ALL the ingredients of a supplement.

Though they may say METHYL COBALAMINE -- they may add other ingredients like biotin, folate, etc. which I already take and don't want to increase the dosage.

Too often this happens, that I discover when reading the full ingredients that I do not want to purchase that brand of the supplement I am seeking, cause they have created a whole cocktail I do not want in my regimen.

BTW -- this concentrated form of B-12, which protects nerve fibers and energizes is a SUBLINGUAL cherry tablet. Placed under the tongue, and moved around, it acts quickly. I take it in the AM as I don't want to feel energized beyond a certain hour, which I try to reserve for relaxation, winding down, preparing for sleep.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-03-2014, 12:27 PM   #8
Andrea Barnett Budin
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Re: Why i take supplements

Hi Sisters,

I keep getting PMs asking for my SUPPLEMENT LIST.

Last time I posted an updated version was 2/6 -- in this thread. So please check it out.

And -- what's up with the old way of doing colors in your post??????


Mysterious...

LOVE,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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