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Old 02-23-2013, 12:32 PM   #1
jaykay
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Join Date: Oct 2012
Posts: 646
Re: Interesting Presentation on Vitamin D

Really interesting how all of us are so different. I don't think I was tested until about 7 years ago and I was pretty low at 20-ish. Both onc and endo were concerned, but like Steph, they like it around 60-70.

Bone density increased on arimidex? Go figure.
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 02-23-2013, 05:42 PM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Interesting Presentation on Vitamin D

I have no idea of my starting number either. For my mom, sister and cousin - all got Vitamin d IV drip and then had to take the mega 50,000iu per week (one weekly pill) for 6 weeks. My sister is diligent she does listen to me about D and figures that maybe she dodged a bullet by only having DCIS. My mom, not so good. I don't keep up with my cousin much. She only called me when she was diagnosed and going thru treatment. She is almost 5 years out now. I do not think we process it well and need alot. Like I said, my 4000iu per day only gets me to 46 but I can live with that. I did think I might do 5000iu but I'm not too sure.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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